Inspirational Video Share: Meet Dandy, Healed Either Way!

Spinraza Thoughts So Far...

I know I said I was going to share some information about the new treatment, first ever treatment that is for persons living with SMA (Spinal Muscular Atrophy), like me! It is not available in Canada yet, but it is in the USA. My reservations about celebrating this treatment still stand because I have yet to confirm that the process is ethical. My heart goes out to the little ones who seem to be benefitting from Spinraza. Yet, I remain reserved. Not sure why, I just really need to know and understand more. 

Cured In A Body With ALS 

On that note, I want to share an inspiring video about a man named Dandy who lives with Amyotrophic Lateral Sclerosis (ALS). ALS is a cousin of SMA but to date as far as I know of, this disease attacks people in adulthood and tears down the entire body's muscles within 2-5 years. The coolest thing of all, inspite of the rapid progression of the ALS, Dandy considers himself already healed. Yes, his muscles do not work, he needs assistance breathing and eating with a G-tube, and assistance with all aspects of daily living. His speech is affected as well and as ALS rages on, unless a cure or miracle happen, he will lose all speech and eventually his physical life on earth. But he knows where his real hope comes from. Take a watch and see why Dandy considers himself healed, when the world would disagree. I want to add that I concur with this inspiring man's viewpoint.

LUCY WEDEMEYER, ON BEING A WIFE AND CAREGIVER: Be Inspired Part 2

 This video is a great, meaningful interview with Lucy Wedemeyer, wife of Charlie Wedemeyer. Her husband miraculously lived with ALS for over thirty years. 
Click this link to here to watch her interview with one of my heroes, Joni Eareckson Tada, as they discuss the role of caregiving and what that means when you spouse or loved one depends on your care. 
BE ENCOURAGED Caregivers!

MEET CHARLIE AND LUCY WEDEMEYER: Be Inspired Part 1

MEET CHARLIE AND LUCY WEDEMEYER: Be Inspired

Click this link here for part one of a very inspiring story.

CHOOSE LIFE: HUSBAND'S BATTLE WITH ALS EMPOWERS WIFE TO LIVE

As Canada's new government apparently seeks to legalize assisted suicide, my heart breaks at the thought of folks supporting such ignorance that devalues human life. It is why if I find great example such as this couple, I want to share them. Hopefully, through awareness, education and a miracle, those who believe the lie, that to die by taking your own life through the hands of another because you have a life altering disease or such, will open their eyes and see the value of all life.
As well, I pray that the blind will see that living with diseases and disabilities is a part of life for many of us and by supporting assisted suicide and Euthanasia, it sends a very negative message to those who live with dignity no matter how tough it may get.
Psalm 139:14-17
14 I will praise thee; for I am fearfully [and] wonderfully made: marvellous [are] thy works; and [that] my soul knoweth right well. 15 My substance was not hid from thee, when I was made in secret, [and] curiously wrought in the lowest parts of the earth. 16 Thine eyes did see my substance, yet being unperfect; and in thy book all [my members] were written, [which] in continuance were fashioned, when [as yet there was] none of them. 17 How precious also are thy thoughts unto me, O God! how great is the sum of them!