Corona Virus Crises Concerns: Depending On Others

Hello world! This is the first time in our life that the entire world is in sync. All because of a new virus that is from the Corona virus strain. It is called Covid-19. Apparently it is always changing, I believe the term used these days is, "fluid." Based on our initial research and the concerns we have as person who are a part of the vulnerable population, trying to trust the media we made a video from that perspective right here.

Watch Below

Living Independently At Any Age

Hi guys! Hope you are all having a great weekend! I just want to share this with anyone who wants to

know about Self Directed Care or about being a "Self Manager" of your own personal care attendants or Personal Care Assistants. For about twenty years I have been blessed with being able to hire and

Illustration of me,  by me :o), Anita Harris Berglund

manage my own, thanks to the program in the video below about the program in Ontario, Canada.
Click here to see a previous article about my personal experience hiring and managing my own care.

There are programs available in some countries that have such services to enable independent living. It is perfect for those of us who want to have a say in who enters our home to provide care and assistance and who do not mind carrying out the administrative aspects. In fact to be a self manager under the Ontario D/F program, the applicant must be able to recruit, hire, train and administrate their own employees.

Watch Below: Direct Funding - Ontario, Canada

Prior to hiring my own PCAs, I was enabled to live independently in an S.S.L.U. apartment building for eleven years. That may be an option for you or someone you care about. Support Service Living Unit means, there were on site 24hour PCAs. When I needed a hand, I just phoned. Emergencies
were answered to with a paging system. Now it means possibly waiting because they work for all who require their assistance. It worked adequately early on. I was thankful to be able to live on my own. Only trouble, not all PCAs are kind, caring, respectful and compassionate. But if you needed a hand say to go to the washroom, and someone who may cause discomfort or uneasiness is working, you have to press through it or hold "it" in. And that isn't good for your body.  Until the Ministry of Health developed Direct Funding, it was my only way to live alone.

There are people who have insurance settlements from accidents and such or plans that enable them to hire and manage their own care. In Canada we can receive tax credits/deductions for any funds used to hire someone to assist with daily living.

Then in many places as in Ontario, there are agencies that offer homecare assistance. You may not get to choose or even know who will be coming into your bedroom in the morning to help you up, but, it is better than being stuck in a hospital. We have met friends who had to live in a hospital for a year or two after rehabilitation from an injury or life altering illness, waiting for a wheelchair accessible apartment/home.

The Aging Population and Independent Living
Because of the Baby Boomer population, there is a high population of dear citizens who are entering stages of life when they require more physical assistance. Without assistance, it may be too dangerous or just physically impossible to live alone. Many of us have spouses and family/friends who lend a loving hand to enable aging and residing our home. However some do not and they want to live out their life in their own home and not a home for the aged.
What is Available for Me?

 If you are getting older, like my husband. Our Province (an maybe where you reside) does have

There're always dear little friends 

who lend a hand!

agencies that provide in home care services. CCAC, Community Care Access is the one stop "Shopping" for receiving assistance. If you aren't sure, Please check with your family Doctor what options are available.
My Mom just informed us that we apparently can call Red Cross to have volunteers come to shovel our snow for seniors. We will be calling to check on that service.
What If I Need Nursing Care?
If you require care that only can be administered by a medical facility than please follow your physician's care plan for you. However, if you are able to have you health issues managed at home,  there are places where in home nurses are available. Depending on your preferences and needs. Personally, if I had healthcare needs such as medication administered or a wound cleaned and dressed,  I would simply train my own PCAs to provide that care. However exercising discretion and wisdom to seek out medical professionals if my situation had no other choice.

If you have any questions please comment below or email us at walkingwayoverrated@gmail.com
Hope this was helpful :o)

YES INDEPENDENTLY - Updated!

Living with a physical disability often means hiring someone to be our "arms and legs." Depending on our abilities and level of care needs, are what determine just how much assistance we may need....
ALWAYS A WAY
I am one of those individuals. In my situation, living with a neuromuscular disorder called Spinal Muscular Atrophy type 3, means progression of my muscle weakness.  That means as the years have clicked by, my level of care needs increase. My hands can still type this article, albeit slowly, but my arms can't be raised. I can sort of  try to move my right forearm to reach something on the table, by "walking" my fingers across the table surface. Can you picture that? :o) It is amazing how we can come up with ways to figure out how to do things in a different or new way, on our own, when your abilities are changing.
For me, it has been  a blessing, to know that my muscles were/are going to slowly stop cooperating over the course of my life. It is one of the reasons that this blog is called Walking, Way Overrated. I did walk and for me, that ability slowly crept away. It wasn't a huge loss, because I had been prepared for it.
Mind you, these days, I must confess, that in spite of knowing what may happen next, I am a bit nervous. As long as I had the basic the use of my hands and forearms, I could still create, cook, shop,  knit, sew, garden, sort of hug and things like that. As of this moment, fifty percent of that isn't possible anymore. But thanks to my dear husband, I get to direct his hard working hands to shop, prepare and cook, not mention the many other ways he helps me out.
As for being a visual artist,  I find myself trying to get all I can done.  (my recent passion has been working in polymer clay) Working steadily whenever I have the energy and health to.  My thinking being, work while you still can. Just incase, the day comes, my hands decide to not work with me anymore! My dominant hand is the right one, the left one's job is to drive my power chair :o) So far, so good. CLICK HERE if you want to check out my artistic side!
It's all in God's hands. Ha, my hands are happily in HIS Hands!  I trust His provision. It's just the one function that I didn't really plan on losing before He takes me to my Home in Heaven!
These changes lead to automatically problem solving, as  many of us go. There's always a way,  if not with our own limbs, especially with the assistance of friends, family and PCAs!

LIFE CHANGES....NOW! 
Craig didn't always use a wheelchair. When he faced pretty much sudden changes in his lower limbs, he ended up having to live in the hospital for about three months in rehabilitation. At that point, in total, he had already been in hospitals a total of about six months. Anxious to breathe the fresh air at his home on the lake, he asked to go home. Turned out, it was too soon. In spite of the fact that he had to remain a rehab out-patient for aa total of two years. When he talks about it now, he says that he definitely should have lived a bit longer in the hospital. But he did it on his own, with a bit of assistance from an outside homemaker program. He lived on his own, with no one to call on for help. He happily shares how called on God's help daily! Craig has many amazing stories, miracles really, of how he was clearly helped physically many many times by God's ministering angels. No, he doesn't worship angels, we know though that the Bible says they are ministering spirits sent to help God's people. I too have incredible stories about God's protection, provision, and just overall help in every day life.
A good lesson to learn from Craig is, if you are facing changes to your body like that.  As anxious as you may be to get out of the hospital setting, make sure you feel completely comfortable, fully equipped to live your new life, having all the physical supports you need.
PRESSING THROUGH
Over the course of our lives, Craig and I, have admired so many who have embraced sudden life altering injuries and illnesses. Not meaning they were happy about the changes, but they worked through it all with the help of family, friends, programs like rehabilitation, occupational therapy, physical therapy, independent living classes, problem solving, learning new ways to live their changed life. And many of us would say, nothing would have been possible without Jesus Christ being our strength (Craig and I "amen" that!)
The many people we admire, are lives that were changed suddenly, from able bodied, to paralyzed from the neck or waist down, diagnosed with progressive Multiple Sclerosis, or Neuromuscular Disorders such as ALS, and other issues,  they may not have welcomed the life altering events with open arms. In fact, I don't know too many who would. In fact, there are countless stories of those who asked to be removed from life support or have something done to end their life on purpose.  (One huge reason why the recent discussions in Canada, about the legalization of euthanasia, deeply saddens me and many of my peers)  One friend we know was in a motorcycle accident, receiving a serious head injuring, leaving him paralized on one side of his body. He told me once that he was on life support and wanted to be unplugged to die, believing life wouldn't be worth living. This dear fellow continued to share with me how thankful he was that no one pulled the plug. His life was a blessing. In fact, he fell in love and has been happily married for years now. They live together, with the assistance of Personal Care Attendants like I do.

Life has taken on a whole new meaning to so many of us.
I remember a neighbour once that told me in his broken communication that he once was so depressed that he tried to take his own life with a shotgun. Left with a severe head injury, he would never be able to walk without a cane, or speak clearly and smoothly, nor would he be able to write and spell like he did as an adult. But, he told me that he was so thankful that God saved him from his really wrong choice. Yes, his case was unusual and self inflicted but, if you ever faced depression, it can swallow you up if you let it, leaving you unable to think clearly and wisely. Personally, Craig and I believe depression that intense, is a spiritual battle in most cases. I remember feeling it myself as a teen, but thankfully was too terrified of dying. My point is, our friend made it through a tragic, life altering event and was happy to be alive. He too spent time in rehabilitation learning new ways to carry out daily life.
My Heroine...

 Joni Eareckson Tada, broke her neck in a diving accident in 1967. As she faced quadriplegia, never walking or feeling from the chest down, this side of Heaven, she too asked a friend to cut her wrists. Believing the lie that her life was no longer worth living. Thankfully, her friend didn't carry out Joni's request and the entire life altering event, changed her entire life, body, soul and spirit. Her life has

http://www.joniandfriends.org/television/id-rather-be-wheelchair-knowing-him/

been incredible. Click here to meet Joni and her husband Ken. It was her story that inspired me more than a few time through my own life. It was all she went through that caused her, to depend more and more on her Lord and Saviour Jesus Christ. Her life has been a testimony for millions of us. Yes, she is an exception to our everyday lives,  she is an artist, advocate, has an entire organization called JONI AND FRIENDS, sings, collects and manages sending refurbished mobility equipment to many in other countries (Wheels for The World), is married, travels the world, is a public figure, author of many many books, has a radio program....Click her to see JAF. But think about it, if we go through "bad" times, get through it with a whole new way of living, and it helps to encourage even one person, it is so worth that one life. In God's eyes, one person is worth everything. One person Matters.

http://www.joniandfriends.org/television/id-rather-be-wheelchair-knowing-him/

Meaningful Work...
And all these lives, Joni's included, like mine too, are able to be lived out fully, joyfully, even through pain, on this earth, made possible by God. Blessing us with not just friends and family, but trustworthy, compassionate, reliable individuals, PCAs, willing and able to give us a hand so we can live Independently.  What a meaningful way to be employed. Our friends and family do it out of love, for no remuneration. But there have been many who have chosen out of love for helping others, to become PCAs, as a career. Doing what they love, and as a bonus getting paid to do it. These employees matter to me so much, I wish I could pay them even more. (I am restricted by provincial funds). Sure, I have encountered some over these last four decades or so who clearly do not "love" what they do, it's only a jobber a stepping stone to something they believe is "bigger," BUT, the majority I have been supported by, give others a hand because they want to. It matters to them, it matters myself and countless others like me, more than they will ever know. The fact that they happen to be paid for doing something that matters to them, is meaningful, what a great career. No, it will never yield the dollars of a lawyer, Registered Nurse, Doctor...Movie Star or Hockey Player...Thankfully, there are so many out there, who are humble, willing to be "behind the scenes" so to speak. To think when I get to hang out with a bunch of friends, say something like getting married, I was able to show up dressed beautifully (wearing the custom fitted dress made by my loving aunt), because one of my PCAs got me up that morning, helped me get all cleaned up, putting on my wedding dress, putting me in my wheelchair just the way I need to sit...meeting all of my physical needs so I could show up to the church on time. Sitting upright, comfortable and well cared for because someone who isn't into being in the spotlight - made that possible. And each day of my life, made possible by wonderful ladies, who chooses to work for me, knowing that without one of these girls, I would have to live in a hospital. Thank You God!

Just Wanted To Share This Video Link
I Just watched this great interview with Joni Eareckson Tada and Lucy Wedemeyer where they talk about caregiving, especially when the one being cared for is your spouse or family member. Click here to watch a meaningful video.

BE INSPIRED...PURPOSE AND REASON!

We heard a Pastor once, passionately declare to the congregation, how insensitive it is when someone

is suffering or struggling, to be told that "all things happen for a reason." It wasn't the first time I heard words from his mouth that made my heart sink, because it was obvious to me that I was the person he was describing.
After all, being honest about yourself and repenting of anything that God may be showing you through the lips of another is one way He teaches us right? I remember a distinct sinking feeling in my heart, because I was one of those people. No, not the suffering person, but the one who always uses that very same phrase "all things happen for a reason." Never did I think I was being insensitive. It is something I know to be true from experience. That includes even if you can't see why at the time. Nothing is ever in vain. God is Sovereign and even if some things make no sense, I know He is worth trusting completely.

Thankfully, God taught me a while ago, to not assume that Christian leaders are right all the time, to make sure that their words line up with His Word, so the sinking feeling left as fast as it came as I was reminded that it is true, all things do happen for a reason and nothing happens without purpose. Just read these words from God's infallible Word:

Luke 12:7 NASB - "Indeed, the very hairs of your head are all numbered. Do not fear; you are more valuable than many sparrows." 

Romans 8:28  And we know that God causes all things to work together for good to those who love God, to those who are called according to His purpose.

[Rom 9:13-23 ESV] 13 As it is written, "Jacob I loved, but Esau I hated." 14 What shall we say then? Is there injustice on God's part? By no means! 15 For he says to Moses, "I will have mercy on whom I have mercy, and I will have compassion on whom I have compassion." 16 So then it depends not on human will or exertion, but on God, who has mercy. 17 For the Scripture says to Pharaoh, "For this very purpose I have raised you up, that I might show my power in you, and that my name might be proclaimed in all the earth." 18 So then he has mercy on whomever he wills, and he hardens whomever he wills. 19 You will say to me then, "Why does he still find fault? For who can resist his will?" 20 But who are you, O man, to answer back to God? Will what is molded say to its molder, "Why have you made me like this?" 21 Has the potter no right over the clay, to make out of the same lump one vessel for honorable use and another for dishonorable use? 22 What if God, desiring to show his wrath and to make known his power, has endured with much patience vessels of wrath prepared for destruction, 23 in order to make known the riches of his glory for vessels of mercy, which he has prepared beforehand for glory--

Psalm 139:1b-4 O LORD, You have searched me and known me. You know when I sit down and when I rise up; You understand my thought from afar. You scrutinize my path and my lying down, And are intimately acquainted with all my ways. Even before there is a word on my tongue, Behold, O LORD, You know it all.

Psa 139:13-17 For You formed my inward parts; You wove me in my mother's womb. I will give thanks to You, for I am fearfully and wonderfully made; Wonderful are Your works, And my soul knows it very well. My frame was not hidden from You, When I was made in secret, And skillfully wrought in the depths of the earth; Your eyes have seen my unformed substance; And in Your book were all written The days that were ordained for me, When as yet there was not one of them. How precious also are Your thoughts to me, O God! How vast is the sum of them!
Purpose
Pretty much, most of us who live and breathe, have been inspired by the life of another.  Joni Eareckson Tada who dove into the Chesapeake Bay at the age of seventeen, breaking her neck, resulting in paralysis from the shoulders down. From the depths of despair, seeking death, she was stretched and challenged, pushed to emotional brink and physical limits that most of us will never know, to the point where she unswervingly could declare to a peer who was questioning the "whys?" questioning God, that she would rather be in this wheelchair knowing Him, than on her feet without Him. Thanks to God opening our eyes to see, we believe beyond all doubt that, because He knows all things, He permits in our lives to cause us to see that we need Him above all others and secondly, to then encourage and support others who may live in similar situations.
Fear No More
We didn't always see life or God in this way. At the ripe old age of seven or so, after years of tests

and speculation about why my legs were so wobbly, collapsing beneath me from the time I began to walk, I heard a "specialist," declare to my mom, when I was about seven years old, that I would be dead by the time I was twenty. That caused me to face the real meaning of life at an extra young age. Only God knows why, but the meaning of life and what happens when we die, pounded at my heart repeatedly.  It gnawed at my spirit and often lead to deep times of depression because I was terrified. Many nights, I would lie in bed agonizing over why I had just lived today, that today can't be re-lived and tomorrow, will fly by just as quickly. To just let go of these thoughts and live life to the max, was not an option. If you have ever gone through the same thing, you know just how much those thoughts and queries consume everything you are.

Respite from this mindset occurred after much testing and seeking, the day I knew beyond all doubt, that Jesus Christ is our  Lord and Saviour and anyone else's, just for the asking, by believing. Every fear of death and question about meaning melted away. For me it took years of searching, even passing on thee Answer early on.  It took years of multiple bad life choices. But even in all that, there was purpose in all of that. That includes  perverse horrible encounters with abusive individuals and being robbed of childhood innocence early on.  Without all of it, I wouldn't be able to knowingly say,  I understand, I have been there and I know the only One Who can help you. There is a reason for everything. Nothing is in vain.

on that note, it is not insensitive to say to someone who is suffering, "everything has a reason or purpose." Not, if you mean it. To those "Christian" leaders who think it is insensitive, clearly must not trust in God's Sovereignty. Again, see what god's Word says.

Mary Jane Ponten - In God's Perfect Time! | Joni and Friends

Meet this inspiring 80 year old woman. Born with Cerebral Palsy, has lived an incredible and inspiring life. She was married, has children and has a heart of ministry. Click the caption below to the video link about her or click here.

Be inspired.

Mary Jane Ponten - In God's Perfect Time! | Joni and Friends

http://www.joniandfriends.org/television/mary-jane-ponten-gods-perfect-time/

I'VE GOT QUESTIONS... UPDATE ON NICK VUJCIC

Congratulations Vujcic Family!

Ever meet Nick Vujcic? Well, we haven't either but, in this virtual age, it feels like we get to meet people we normally wouldn't. So here, meet Nick...

Here are three of previous posts I did a while ago so you can learn more about why millions find him so darn inspiring:  Just click on the titles to go there: "Life Without Limits," "I've Got Questions?" and "No Limbs, No Limits"

One amazing fellow. A lot has happened since my last post about him. He got married and since, they have been blessed with two sons! Wanted to share these links and pics...

Be encouraged. 

As I lay about afraid of some current health issues, watching Nick helps me to remember, not give in to fears of the "what ifs?" But to trust God completely and always know, I am not alone. 

Neither are you!!'

nick-vujicic-and-his-wife-are-expecting-their-second-child

Here Is Baby Number Two!'

http-//expressng.com/2015/08/australian-envangelist-nick-vujicic-the-man-with-no-limbs-welcomes-second-child-photos/

Shared Experiences

Experiences Many Persons Who Use Wheelchairs Have.  
Click the title to check out this interesting list of commonly shared experiences amongst those of us who happen to use wheels for legs. My husband and I both have had similar experiences and more. 

The one regarding parking in accessible spots, well for us, twice, we were yelled at with extreme prejudice and ignorance. And both drivers were the ones parked beside our lift vehicle, not actually in a wheelchair accessible parking spot. In fact, we were parked in one. Instead of not being able to park, we were blocked from being able to get back into our van! It was crazy and unbelievable to experience such behaviour! 

Do you have any interesting experiences, good or bad due to the fact that you use wheels? We'd love to hear from you. Just write it below. 

Anita :o)

New Arms and Legs....

PCAs or PSWs? What's the Difference?
It's time again. Time to hire a new Personal Care Attendant/Assistant. Sadly, one of my regular girls are moving away.
Personal Care Attendants, or Personal Care Assistants and Personal Support Workers, essentially all carry out the same duties. Yes, duties may vary depending on the company one works for, or in my case, the individual you work for. Being hired by an individual, self manager or by family members to assist one individual, is far different than being hired by a company to provide care for many clients.
Over twenty years ago, I was involved with assisting in interviews to hire for the company I

originally used the services of. They used the job title Personal Care Attendant and later changed it to,  Personal Care Assistant. It worked for me, and either of those titles are what I choose to call my girls.
Personal Support Worker or Not?
When I first became a self manager about twenty years ago, one of my first employees signed up to take the very first Personal Support Worker program at our local college. She and I initially laughed, wondering why folks would have to pay to learn something that you could learn on the job. That is how she came to work for me and how I still hire, no special certificates required. She signed up for it because her school fees were being covered by her other employer, a large home care company. As she worked through the first PSW program, she did affirm that they didn't really learn anything worth paying hundreds of dollars for. She was an exceptional individual, only 19 when I hired her. She was one of the most responsible, level headed, caring individuals I ever was blessed with, to have as a PCA. She went on to use her natural skills to continue being a care giver and become a manager for a company that provides supportive housing.
When it comes to the validity of the PSW programs that are throughout North America these days, I must say, I have learned why it it was created. Well, no one told me, I base this on what I have learned since way back then. This program was created so care giving companies, such, as seniors care homes, could have a standard when hiring. It is much easier to state that applicants must have a specific diploma. It levels the playing field and they could have a foundation to start from, knowing that all applicants would know the basics. As well, the PSW program has definitely evolved into  much more, offering more healthcare skills and knowledge that was not in the original program. It makes sense to me now, even though it didn't in the beginning.
That being said,  I still choose to consider all applicants, those with or without any healthcare training. In fact, in over twenty years, I must say that the majority of my employees have not been PSWs. It hasn't been intentional. I have had a lot of wonderful ladies of all ages, who are just interested in helping me out. They are willing to learn, able to follow directions well and are just plain great employees. My employees have been college and university students, be it Out door Recreation, Nursing, Environmental Studies...the point being when you hire your own PCAs, you can set the terms you prefer. So for me, I have hire standards, in that I seek out not certain papers, but those who are trustworthy, dependable, willing to be trained, flexible, kind and compassionate. It is what works for me.

Why do I not require PSW certificates? 
Because I have found based on my eleven years with a company that did the hiring and managing, (more on that in part two to come.) that they didn't have any set standards. It was all about the interview, about the personality, their references, the ability to learn and the desire to lend a hand and listen to the tenant's directions or needs. Carrying out tasks as if it were the person, like me doing it, enabling people again, like me, to live independently. I did criticize that this company didn't have any foundational standards or requirements and that was the reason why there were often issues with employee behaviour. After all, to me, it made sense that when you hire for many tenants or clients, that you would want to have a base requirement, hoping to obtain the best quality care possible. But, since hiring my own PCAs, I choose to go by each individual, rather than seek paper work, just the way they do/did it.

Set In Stone
My experience has been that those who already work for care providing companies, instead of individual/private hire, or those who have PSW certificates, they often are set in a pattern. Some are set in stone and some not. It makes sense that when one pays and enrols in a program such as the Personal Support Worker one, you are seeking to learn and follow the directions they give you. The ultimate goal, to obtain a job in that field. No doubt, most of those who take a program like that have a specific target. Some just want to be in charge, carrying out tasks as they were taught, and even as they want to. Many of these positions, require the initiative of the employee and not the wishes or direction of the client. This is an entire different focus and when someone like me is interviewing someone with a back ground like that, I have learned to ask the right questions. I need to discover if they would be able to handle my direction, and let go of what they have been taught. It is important that I let them know that I will need them to be my arms and legs under my direction. It may sound rather odd to some, but trust me it has been an issue. Statistically, many who are trained to work in insttuions and such, get offended when you ask them to do things in a specific way. It isn't their fault, it is just how they are wired or how they were taught.

This doesn't mean PSW certificate people don't work out for a private hiring self manager like me. It means, I just need to let them know what my expectations are and to really be specific in the interview, it is usually pretty easy to know if someone needs to be the "boss" in a sense, and just wouldn't be a suitable fit for my needs.

I don't know what it is, but, nursing students and nurses are wonderful employees. Even though they too are trained to do things a certain way, they "get" that I need them to carry out tasks the way I like.  They aren't offended if I ask them to make the bed the way I like, doing it how I would if I could....

Experience Or Not?
The question then remains about hiring PCAs, should they have experience in health care or not? Well, based on what I have experienced, it sometimes helps make the initial training period more comfortable. Only because you are physically unclothed for some tasks and it is easy to feel uncomfortable at first. Knowing they have seen it all before, makes it easier. But then, not necessarily. Seriously, it seems to be all about the personality. If someone is kind, friendly and open to giving you a hand, understanding why you need them...then being naked and depending on their help, becomes more comfortable than you realized. So the answer is, yes and no. It depends on each person. Whatever works for you, works. I can only talk about and offer advice, with what I have experience with.
Thank You To All Who Have Graced My Life
I want to say that because of so many wonderful personalities, willing hearts to help and understanding of what it means to be my "arms and legs," the physical aspect of my life has been able to happen. I am blessed by God to be able to live independently because of great ladies who make it possible. Because of their smiling faces and helpful attitude, never offended by one particular request, my life is extra blessed. :o)

EXPRESS YOURSELF NO MATTER WHAT - OVERCOMING PHYSICAL CHALLENGES

Ever since I can remember, I have been making art, creating in what ever way I want. Mostly in two dimensions, painting and drawing.  . As my hands weaken, I am always adapting new ways to create. Recently, I just learned how to work with my hands using polymer clay. Never thought it would be possible, especially since my hands are at their weakest so far. I decided to make a short video encouraging anyone out there who may have had their physical abilities change their artistic life. I am here to tell you don't give  up! 

Click video below to watch!

A Coloured Pencil Drawing by Anita Berglund

If you are creative and think you can't create because of your physical situation. I am here to tell you that there is always some way to express yourself creatively. It helps that I was born with my disorder, Spinal muscular atrophy, so it has progressed slowly, leaving me time to adapt as my abilities change.
Check Out a video short on what is new this week at A Bergie Creation (July 13th 2015) My Online Easy Shop that features my handmade jewelry. If you like, please feel free to pass the link along, it helps me out a lot!

Praise God, We Made It Through….

This time last week, I was sharing about how I was about to try spending the night sleeping in my power tilt wheelchair. Did I make it? Well, here I am. I meant to write about it the next day, but...needless to say, my brain cells were lacking all last week. After some much needed R.E.M. sleep, I can now put words together, to share the following.
I Must Be Dying…

First of all I want to thank God for giving Craig and I the strength to make it through last week. A quick recap (read about it here), my main Personal Care Attendant had to suddenly be off for a week or so, to recover from a back strain injury, acquired at home. Which meant,  I had an, "Uh Oh, what am I going to do" moment. When you depend on the arms and legs of others to get in and out of bed, among a myriad of other tasks, the temptation to panic arises during those moments. And anyone who knows me, knows that even though 99 percent of my life span, has been spent relying on the assistance of others, I am the opposite to a laid back person. When the girl I count on suddenly is unable to give me a hand and I don't have back up assistance for those "just in case moments," my initial reaction isn't as I know it should be… relax, pray to God for help, sip a cup of coffee and

Me in 1966. The best way to sleep in a bed or crib :o)

reflect on how it will all work out….Nope, that's not me, just ask my dear husband…"Craig! What are we going to do? I am going have to live at the hospital or, I must be going to die, so God knows I don't need anyone to help me. Oh and all of this is said loudly,  repeatedly, under great duress, with poor Craig reassuring me that all will work out fine. Do I accept his assessment of the situation? Nope, of course not! Again, the freak out, over reaction, panic and anticipation of a fatal coronary event ensues. And this is just when I have only one employee and am trying to hire a second person.
God's Grace, Really Is Amazing!
Well, thanks to I am sure, God's intervention, a week ago this morning,  as my injured attendant was clearly not doing well physically, an unusual peace flooded my heart and mind.  The temptation to freak out with worry, after she left, did knock at the door, but it didn't happen. Knowing that I had no one to fill in for her, an amazing calmness came over me. I even had a bigger reason to panic, I had been in process trying to hire another morning person, but hadn't yet. And yet still, I sensed that worrying and freaking wouldn't help anything, that God, as He always does, would provide what I needed.  And guess what, He did! Thank You God for Your amazing Grace, for providing me with the best of care and the hearts of three caring, committed, willing and reliable ladies. Did I worry even a little? Of course I tried it, but recanted as God took care of all the details.
The Camp Out
Okay, so yes, God provided for my needs all last week. Thank you Lord for that, thank You for everything actually. I was never stuck in or out of bed and thanks to my dear husband, he helps me out as he always does. But, like I mentioned, I wanted to try to see if I could sleep in my tilting wheelchair, just for the first night. Here's the thing, I didn't have to, I had planned for the worst, hence the plan to not go to bed, but both of my casual gals were able to give me a hand that night and morning. However, I insisted on trying out the camp out idea and decline their offers.
Energize?!
Well, Craig got comfy on the futon in the living room, I got him to wrap me as snug as a bug in a rug with my favourite "Minky" blanket, Star Trek's Deep Space Nine was set to play, while I tried to sleep….and then I tried the video of the book of John….then I tried to shut it all off….and keeping my eyes closed through it all, while Craig was sawing logs, the hours ticked by, 2….3….5…and then by six am - ish,  Craig got up and we made a great scrambled egg breakfast. It all had to be God's grace because there were times that day, where my heart felt like it was going to just stop beating. My disability involves progressive muscle weakness, so I am use to that floppy, limp feeling.  It felt like five pound weights had been strapped to my limbs. Actually that is the best way to help someone understand what progressive muscle wasting feels like. Clamp on some weight to your limbs and carry out your day. Can't be one or two pounders,  try at least five to ten pounds. Pretty much, gravity is my enemy.
Anyhoo, that following night, in our real bed,  as I laid there anticipating a restful sleep, in spite of the second, third and fourth winds,  the physical fatigue intensified and the weakness actually made me nervous. I told Craig I thought I might not make it through the night. Well, I did.  (you have no idea, how many times he hears me say those words)
Lessons
Number one, no, sleeping in my wheelchair is not a good idea. However, if I had no choice, I could survive it, Lord willing.
Lesson two, if someone offers you help, take it. After all, when you ask God for help and He throws you a life line, it is really silly to push it aside. I admit that even though I knew in my heart God would care for my needs, I took control and planned for the worst scenario and as a result spent a night of sleeplessness when I didn't have to. May He remind me of this event, should a similar scenario occur ever again.
A third lesson I want to share with anyone who doesn't know that God loves us and wants us to depend on Him. I have been hiring my own PCAs for about twenty years now, and must testify that without God being life, I wouldn't have been blessed with so many dedicated employees. He loves us and wants us to depend on His care.  I have lived without Him in my life and I could never go back to that life. If it wasn't for the love and care of Jesus Christ, this time a week ago…well, let's just say, I believe I never even would have lived to get to this point in my life.

And thank you so much to my great PCAs. You have no idea how much your willingness, blessed me with reassurance not having to "worry" about how I was going to get to or out of bed. We all made it through and are on the other side.  And thank You God for bringing our main PCA back to us, healed and raring to go. 

Get a Kleenex...

http://www.joniandfriends.org/radio/5-minute/paige-and-tyson-snedeker/

Tempted to stop watching the news lately? I've met those who say they never know what's going on because they can't take it, too depressing for them. As for Craig and I, we may enjoy diversions but, we also believe it is our responsibility to know what's going on with the human race. Craig feels that even though it is often tragic and heartbreaking, knowing what's going on beyond our four walls - helps him know what to pray about or who to pray for. We are warned in the Bible about such days. Thankfully God provides rays of sunshine to encourage and strengthen us, be it through His Word, through friends and family or even through the lives of perfect strangers. Well, people we have never met, who are technically strangers but thanks to modern technology, we get to "meet" these people through media such as television and the internet.

Meet the Snedeker family, particularly Paige and Tyson. Here are rays of light to cut through some of the dark stories of late. "Meeting" this family left me with a kleenex in hand… speechless and in awe of how lives like these can actually be real, but they are. (Click the title to watch the video)

http://www.paigesforgodsglory.org/about/

"The Snedeker Family - No Unhappy Endings"

So, if you find yourself grumbling and complaining about the upcoming big "holiday" event, first of all you may want to rethink the whole thing, it causes that much stress…if not, take a break and watch one of the most incredible stories I have ever seen. Two parents have three young children who all have what appears to be a genetic,  mysterious, life threatening, neuromuscular disorder that has no name. Imagine that? Your children, short of a miracle, will not life a full life span due to a disease that can't be diagnosed. Leaving them, legally blind, hearing impaired, connected to respirators, using  power wheelchairs and completely dependent on the arms and legs of others, Paige and Tyson are two incredibly inspiring individuals. They lost their brother to the same disorder at a much younger age than they are now and they both give God all the glory. Only God can put hope and joy in lives that most would consider not joyful or hopeful.

Below is the Link to the Video that left me speechless and tearful (inspirational tears)

  The Snedeker Family - No Unhappy Endings

Below is the website that Paige has featuring her beautiful children's book (click the title to link up)

Paige and Tyson Snedeker - Article from Joni and Friends website

http://www.biblicaltraining.org/testimonials/tysonsnedeker

Below, Tyson Snedeker mentioned in the video about wanting to have a ministry devoted to learning about the Bible. I found this website that he and a friend, Judy Rooks  have called Biblical Training.

Tyson Snedeker -Biblical Training

Doing Laundry Sitting Down!

When you sit down, doing laundry can be difficult using a top loading washer. Here is how we do it using the perfect adaptive aid, a front loading washing machine.

Original  Illustration by Anita Berglund - Copyright November 2014 Can not be copied without permission.

I Just finished a new "cartoon" illustration of Craig doing laundry. Was so happy with how it turned out, I am reposting our older "Craig does laundry video." Hope it is informative and fun in one!
Watch the "Craig Does Laundry" video below!

Dancing In A Wheelchair, No Biggie, But Underwater...

photos by: Freewheeling Norman Lomax/ Rex Features
http://www.digitalspy.com/fun/news/a403294/underwater-wheelchair-dancing-a-hit-at-cultural-olympiad-watch/

We like to not just talk about relevant topics pertaining to mobility issues and experiences, but pass on those extra unique individuals we learn about who are exceptional at proving why our blog has the title it does. Sue Austin, is one of those individuals. Watch and enjoy, as we are encouraged and reminded once again that walking really is, way overrated. Take a look at dome of her artistry.

Promo Video For Our You Tube Channel!

Justin Hines - Take a Listen, You Won't Be Disappointed

 A fews years back an Ontario tourism promo was on our television. Immediately, I noticed a young fellow who was using a wheelchair singing the the song for the video. When you use one yourself, you notice these things. I was so impressed with his vocals and looked him up on the internet. Within minutes, I became a Justine Hines fan. Bonus, he's from Ontario, Canada!
Justin is a singer, songwriter who is a humble artist that views his different abilities as an opportunity for something positive, not as a negative. Loving that attitude, he is an inspiration to my husband and me and we were thrilled to learn that he is coming to our city in two days!
Just want to spread his life and music around, not just to our friends who may want to see him with us - but to whoever stumbles upon this blog.
Here's to you Justin, We wish you well.
Here are some playlists and web links to learn more about Justin.
Justin Hines Inspiring Life

"Courage" Video

"Say What You will"

Justin Hines Documentary Short

Justin Repels Down Hotel in Wheelchair

"Lay MyBurdens Down" video

Justin Is Coming To Thunder Bay, August 20th, 2013!!
Hines is playing at the Italian Cultural Centre on Aug. 20. The show starts at 7 p.m. Tickets are $10 and available at the Baggage Building, March of Dimes, MEDIchair, Painted Turtle, Print Pros Plus, SHIFT YPN office and the Thunder Bay Transit office.
Where We First Saw/Heard Justin Hines!

Rock Church - Life Without Limbs - Nick Vujicic by Nick Vujicic

Going With The Flow -Part 2

Fitting In At Any Cost
Wish I could say that smoking was all I did in an attempt to "blend" in with the world, my choices spiralled down wards until Jesus saved my life in my early twenties.  Sparing the sordid details about my behaviour, let's just say, I was as lost as lost can be. More details on another day.

The point of bringing that up is to share just how compromised and desperate some of us can become when we are convinced, the only way to stop the pain in our hearts, is by going with the flow. Problem is, that flow can be likened to a river of icky white Bondfast glue. Sure at first, some may believe you are one of them and not "different" at all. You may even have a dude come and tell you are cool! But the longer you are trying to flow down that river of glue, that glue starts to form a skin as it begins to dry, as a result, you start to hit globby areas and end up getting caught up in behaviours you never intended. Slowly but surely, if you stay in that river, the glue hardens and so does your heart and mind. Before you know it you are being arrested for shop lifting, boys use and leave you, people are calling you seedy names behind your back, and your spending any time you can numbing the pain with alcohol or drugs, just to mention a few...
Embrace Reality!
More than anything, I am so thankful to our Lord Jesus Christ, for opening my eyes to see the lies I was believing and literally saving me, soul, body and spirit. He taught me to embrace the red. Meaning, let go of trying to be someone and something you were never created to be. Embrace all that is unique and different and me! Life with a disability or visible difference, that some like to point out, is just something that I would have to accept,  instead of hurting myself to show "them" I was equal. How silly to think that I could actually hide those four wheels!
Fearfully and Wonderfully Made

Looking back during the years I was up to my neck in bad, self destructive behaviours, I am in awe and thankful, for the many times it must have been God, Who made sure I would receive messages of Truth.  Not that I was always listening, but He knew what I needed to go through - nothing was in vain.
One time that was so obviously, Him speaking to me...still warms my heart...

Up until the age of fifteen, out of ignorance, I had no problem with abortions. Convinced that, it was just a means of ending a pregnancy and that was that. There will be more about this very serious topic another day. I bring that up because a few years later, after seeing a poster in my apartment building, I went to the community center next door. It was to view a special presentation that featured a film I had never heard of called,  "The Silent Scream".
It was the most traumatic short film I had ever seen. It was a video of an ultrasound during an abortion. I can't bare to watch it again, but I have linked the title of it, incase you want to see it. There was a discussion afterwards. Clueless at that point about the organizations called, Pro-Choice and Pro-Life at the time. That evening, my heart sank. It was there that I learned there were people who supported what was happening to this baby, even after watching what we all just did!
From the back of the room came comments and declarations about human life and the so called "right" to end it, that made no sense to me at all. It was logical, wasn't it? Then, the most amazing thing happened, a lady in the front of the audience, shared Psalm 139 out loud.
Up until then, opening the Bible my dear Grandma H, had given me was rare. As she read God's Word, my heart felt something it hadn't experienced before. Feelings of my own purpose and the love of a God who chose to make us, one by one. It was incredible!
Returning back to my apartment, I unburied my Bible, and looked up Psalm 139. These Words, His Words, were a huge revelation to me. The God of the universe, planned us before any parent ever even wanted to have a child!
Psa 139:15-17  NKJV - My frame was not hidden from You, When I was made in secret, [And] skillfully wrought in the lowest parts of the earth. Your eyes saw my substance, being yet unformed. And in Your book they all were written, The days fashioned for me, When [as yet there were] none of them.  How precious also are Your thoughts to me, O God! How great is the sum of them!

Assuming my folks didn't know about this, I still remember the excitement as I dialled them up and read the passage to my Mom. 

Thank You Lord!