YES INDEPENDENTLY...A Few More Thoughts On That

YES, INDEPENDENTLY!
Living Independently?  You just said folks like you require assistance from others in order to live out your physical life. How can that be living independently? Okay, maybe you, yourself, didn't ask that, but I am imagining someone reading this might have. It's a valid question after all.
How can, I say that I and others similar to me, live independently, when we require assistance every single day and night, no holidays?  Requiring a hand with all or some daily living tasks, such as, getting out of and into bed, personal hygiene,  bowel and bladder routines, all kinds of housekeeping, shopping, pet care, cooking... all aspects of running a home, as well as assistance with employment? Trust me, that question is out there.
So let me clarify what some, I said, some people misunderstand. When someone says they live independently, many picture living without the help of anyone else.  The answer is and always will be from many of us is...We live independently because of the arms and legs or assistance of others, helping us with what  we can not do on our own, we are able to live independently.
That assistance, for me, is made possible by the PCAs, that God blesses me with each day and night, decade after decade.  I was blessed with a bonus, thankfully my husband, who also uses a wheelchair, has what I call "regular muscles." He also takes care of my physical tasks where he can. You should see all the wrinkles he smooths out for me so I can sleep. Not to mention, moving strands of hair out of my eye, and all the other tasks I can no longer do where he can. Cooking is great fun, he is awesome at taking my directions, made possible by all the teaching I received in my four years of high school home economics cooking classes, dear Mrs. Agombar.
I lived on my own since I was seventeen, those classes helped me to not just eat Kraft Dinner, (I actually preferred No Name mac and cheese) Independent living was possible back then, thanks to PCAs and my family.
It is a wonderful thing to be able to live on your own single or married. Yes, we clearly depend on others to carry out the physical aspects of life, but it is as if we are doing it on our own, thanks to the arms and legs of other, who help us to do things the way we like them to be done.

A beautiful thing in my life.

INDEPENDENT LIVING: Becoming A Self Manager Of My Own Care

A Work in progress, my unfinished drawing of me and 

one of my great my Personal care assistants! 

by Anita Harris Berglund

If you follow WWO at all, you would know that I hire my own personal care assistants. Some other titles for this position that I am familiar with are Personal Care Attendants or Personal Support Worker.
Big Decisions To Be Made
It has been about twenty whole years since I was blessed, when our Ontario government decided to begin a pilot project to enable folks like myself, to be able to hire and self manage our own personal care.
Initially, our entire province began with only 80 recipients. I got to be on the interviewing committee that was to select Direct Funding applicants from my region of the province. The main qualification was and is, that you are able to manage and direct your own employees.Direct Funding covers the administrative expenses such as hiring bookkeepers if we choose to not do our own bookkeeping, and other related costs.
To also interview, an administrator from the then pilot project came to our northern Ontario community, along with some other admin folks and "consumers" like me, and we met together for three days (if I remember correctly) in a row.
On My Own
At that point, I had lived in what is called a Support Service Living Unit. What is that you ask? When I was seventeen, I was able to move into my first fully wheelchair accessible bachelor style apartment,  where there were Personal Care Assistants in an office, on site, 24 hours a day. It was a thrill to be able to live on my own, after spending six years in an 18 bed residential institution for children with physical disabilities. It was fun for year one, but as I matured into a "cool" teenager :o) doing my own thing reigned supreme. What 17 year old wouldn't want to live all on their own! Well it mattered to me.
The guys who had lobbied and fundraised, to build and manage the first SSLU in Canada, allowed me to move in a year under the "legal" age in good faith. I was only seventeen and in grade twelve. I will never forget how wonderful and free I felt my first day in my own apartment, all on my own! Wish I could say I was on my best behaviour. Freedom came at a price and to make a really long story short, Jesus Christ saved my life from self destruction. But that is another story for another day.

A favourite PCA I got to work with when I lived in Winnipeg,
Canada for a college internship in 1990ish.

So to be clear, an SSLU is a wheelchair accessible apartment unit that has 24 hour personal care assistants on site for a number of tenants living with physical disabilities. We are assessed according to levels of care needed and then the number of employees working at one time was assessed accordingly. Sadly I have heard about funding cuts and present tenants are not getting the care they would like, when they would like it. As with all not for profit, government funded organizations, budgets are tight and must be followed. To me, it was better to have to wait for someone, living independently,  than to live in the institution I had been or live at home with my folks. I love them, but at seventeen I thought I knew it all and wanted to be on my own as soon as possible.
Do I? Don't I?
During the Direct Funding interviewing applicants time, I was asked if I wanted to apply for myself. Because I had been so use to being able to access assistance fairly fast if I had say, a bathroom emergency, I was too nervous to say yes. So, initially I said no. As the three days passed, I changed my mind a couple of times and ended up submitting my application. (Did I tell you I was diagnosed with ADHD about ten years ago! Hence the ping pong ball bouncing brain effect)  
What changed my mind was ongoing issues with some not so nice PCAs, who worked for the SSLU company where I resided. Don't get me wrong, during my six years as a tenant in three different SSLU apartment buildings with 24 hour PCAs, there were some wonderful assistants. Sadly though, it only takes one or two folks who can really intimidate you and make getting care very uncomfortable. Not ever having the option of who would meet my physical care needs, it was (I think) Divine intervention during the three days of interviewing, that I experienced one of the most

I got to go on a trip to our capital city thanks to Direct funding
 enabling me to bring along one of my first, favourite PCA's, Randi!

negative moments ever with a PCA, that prompted me to apply for Direct Funding.
However, fear of the "what if's" over took me and I withdrew my application within those three days. And then something else happened with her, so my frustration escalated, pushing me over the top. Immediately, I resubmitted my application for Direct Funding the next day.
It helped that the manager of my SSLU offered a back up emergency plan, so I could hire my own PCA's and have access to the on site PCA's with an emergency pager,  should a bathroom emergency arise. With apprehension I agreed to push on and follow through with my application process. It was so meant to be, because out of my entire province, only eighty people would be accepted for the pilot project and I became one of them!
Experience, An Asset...
Thankfully it helped a lot that I had a lot of experience directing my care in my home, with employees that I didn't get to choose per say, yet sort of. During my SSLU years, I had began helping with hiring PCAs for all of us in our building, by sitting in on interviews, offering my opinion, whether to hire them or not.
Flying!
Experience interviewing, equipped me with knowledge that most don't get to have first.  My original employees blessed me beyond words. In fact, all my fears about having bathroom emergencies diminished, when once, I had to press my emergency pager (arranged by the manager of my SSLU) one day, to go to the washroom. The very same PCA, that had sparked me to frustration enough, to apply for Direct Funding in the first place. She just happened to be the one who responded to my call. She came to my door and asked if I could wait 20 minutes? The arrangement I had made with the manager prior was, that I would pay a monthly fee, to access their employees incase of an emergency. Then pay per hour if actually needed. I told her "No, it is why I pressed the pager!"

I think it was it was meant to be, that the very person who upset me so many times, was the one to respond to my call in that manner. Why? Because it helped me to learn to hold it in, with all my might (my bladder that is) and wait for my own PCAs to make it to my apartment. The frustration and uncomfortable feeling was not worth enduring ever that again. So I cancelled my back up emergency service plan, cutting the safety net and flew out of my nest! Thankfully, I believe the Lord provided the option.

Because of D/F I have been able to live
where my dear husband and I want to.

Freedom
Never again, did I not have a choice of who was to provide my personal care. It also meant that I would be able to move out of the SSLU building and live wherever I wanted to. Of course it had to be wheelchair accessible. But until Direct Funding was available, we all had/have to live wherever the 24 hour PCAs on site were. Of course the SSLUs are a great system for many who want to live independently, but do not want to fuss with recruiting, hiring, managing, and training their own personal care. And it was a huge blessing for me for six whole years. The ability to live independently because of the ability to be assisted with other people's "arms and legs" so to speak, is an incredible experience.
We know some folks who have been hit with sudden physical disabilities, accidents or aneurysms and then had to live in the hospital for 2-4 years, waiting for an accessible apartment (SSLU) with 24 hour, on site personal assistance.
So Thankful
In our country, we often take for granted services that are available for persons living with various disabilities, that in other countries that would never even be considered a possibility. We have a friend in Peru who has no funding sources for his wheelchair, personal care and other related supports. He told us he would be dead if he was unable to work full time. Now working full time is wonderful, if you are able, but this fellow physically, has a progressive weakening like I do (Spinal Muscular Atrophy 3) and working full time for him, is a huge deal. I know for me, there are days when a small task, can drain most of your energy for the day.

Working is the only way he could scrape enough money to pay for the basic needs for his life. Literally gathering any last bit of energy to work in order to save his life. A totally different mentality than many have in our continent. And even then, he was unable to afford a new battery for his power chair, (here they are about $500-600 CDN) and he primarily had depended on his family assisting him. But his family was aging, and his primary care giver, his dear mother passed away. Needless to say,  he was experiencing fear and serious concern regarding how to obtain actual people to help him out and fund care for his daily living needs. Hearing his story,  helped to open our eyes to see just how blessed we are to live where we do.

http://www.yelp.com/biz_photos/joni-and-friends-agoura-hills?select=Eywp_vu2FgZq9VCRU__1xw

Taking For Granted What Others Can't Even Consider
In many countries never mind receiving personal care, owning a wheelchair is something not possible. Joni Eareckson Tada's Wheels For The World, do all they can to provide mobility devices to places where physical mobility may be sliding around on the ground using your arms or attaching some wheels to a plank like a skateboard, or never being able to leave your bed. I can't ever imagine that. I am so thankful to God for the abundant blessings in my life.
Valuing Life
We know depending where you live in this world, living with a physical disability can mean lives opposite to our lives in North America. In some countries where having something like a hearing issue, a child can end up abandoned, living in an orphanage. Some countries, like I mentioned, there is no access to personal care, unless it is family, or mobility devices. And tragically, in a continent where we have many supports and access to equipment and care, even if it has to be in a hospital, there are North Americans who choose to actually abort pregnancies when they discover their baby has a genetic disease, such as mine. So even though we have access to care other countries don't know of, some ignore those blessings including the blessing of life regardless of abilities and make tragic choices.
It is by sharing our stories that hopefully, we can help those who take so much for granted, to treasure life no matter how their bodies are being affected by disabilities and illness. For me, it is the ability to hire and manage my own Personal Care Assistants so I can live alone with my husband. Not to mention the ability to receive funding assistance for our wheelchairs, cushions and healthcare. Be thankful Canadians!
Share Your Story, Questions, and Thoughts below. We'd love to hear from you.
Thanks for stopping by!

Bridging The Gap!

Recently our under van lift made by the Braun Corporation hasn't been working so well. Thanks to God's leading, by putting the idea into our head, we were able to call on a good helpful friend Maurice, to make what we needed to make our unusable lift, usable. We are waiting for the part to get the lift totally fixed, but frankly, I feel safer with our new aluminum bridge. Not sure what I am talking about? That is why I am posting the "Thank You" video about this very subject.

Under Van Lift vs Inside Van Lift.
Our lift is called an "under Van Lift" which means it stores or stows away under our van. The one I grew up with that my folks had was the more typical inside van lift. It takes up interior space and would hinder me being able to sit beside my husband while I drive. See a previous video all about our wonderful van below. (or click here)

We'd love to hear from you. If you have a van lift or any questions, feel free to email us at walkingwayoverrated@gmil.com or comment below~

Yay, Craig Gets Relief - His First Quickie Xtender Power Assist Wheels!

Watch Craig's First Day With His New Quickie Xtender Wheels (click here to see the video)

Free Wheelin'
Here are a few photos of Craig taken day he finally received his new Power Assist Wheels made by Quickie Xtender. He has had them now for a month or so and he is loving them. May 20, 2016, was the first day he got them (the day these photos were taken) We live in Ontario, so we haven't seen how well they will do in our lovely winters or if he encounters serious rain. In fact he was warned that they are not waterproof per-say, but obviously he would be able to flee if rain came down.  Not going to worry about that, just enjoying them for now. He actually first learned about them when he saw a friend cruising uphill in the middle of winter, so that should prove he will be okay in our unending winters.
Power in the Hub
Craig has hurt his shoulders on more than one occasion due to the fact that wheels aren't meant to be his arms. A common issue for persons who have pushed their own wheels for decades. His injuries to his rotator cuffs (one on each shoulder) occurred while he was transferring from his bed to his wheelchair. Meaning, when you use your arms for legs and you injure those "legs," you still need to use them to get around, kind of difficult to rest the injury. It is why these wheels came highly recommended by his physio therapist. He still has to push and use his shoulders and arms, but these amazing wheels are created with sensors in the rims, that are connected to the reliable Yamaha made motors, in the hub of the wheel and then connected to the small battery pack that you can see on the back of his chair below. The harder or faster he pushes, the chair will pace itself accordingly. It is super cool.

Freedom! Craig's first day using his new power assist wheels.

He has felt the greatest relief when he does our grocery shopping. Trying to push a cart with one hand and his chair with another, especially with those stubborn  shopping cart wheels. Not too mention the weight increase as you add more and more goodies.
Phew!
And the added bonus? His sheer enjoyment just being able to go up the many hills in our neighbourhood! I am so happy for him.
Power Means Freedom!
I remember when my muscles were weakening to the point that pushing my manual wheelchair down the long halls of my high school in the eighties, was daunting. When I was about seventeen, I was blessed with my first power wheelchair! The sense of freedom was incredible. No more having to depend on others and no more slowly creeping down the halls, bit by bit...struggling to move my wheelchair and myself, to my classes. The difference between my wheels and Craig's? A power chair is driven fully by motors and two large batteries, about the size of car batteries (making my present power tilt chair weigh at least 250 pounds - without me in it!). The chair pictured below, was driven with rubber drive belts that powered the large rear wheels. My modern chair (picture below the ancient 80s one) has much smaller rear wheels and no drive belts. I believe they are called direct drive wheels, the front ones are regular wheels with no motors). And as you can see, my newer chair has tilting capability. It makes dental appointments and movie watching a dream. Literally, a dream, I fall asleep really easy when laying back like that!

Craig doing it the old fashioned way - 100% ARM POWER!

Highly Recommended
So if you are blessed like we are, in a country where mobility devices can be partially paid for with government programs, insurance settlements, Workers Compensation, or if you want to invest without any financial assistance- we can both attest to the fact that electronic mobility devices make life quality increase a hundred fold. Far worth it, if you can manage it.

My dear Grandpa and me in my first power chair. (1980s)

If You Don't Use It...
If you do get a power mobility device and are physically able...make sure, if you can use your arm muscles, to exercise as much as you can. You see that old saying, if you don't use it, you will lose it, still applies. Craig has relief using the wheels, but because he has "regular" muscles, he still has to make sure he doesn't become totally dependant on the power assist wheels, so he won't atrophy his muscles. Healthy muscles have a memory and the longer you do not use muscles, the more they weaken.
In my case, since I have spinal muscular atrophy, my muscles unavoidably weaken, so help like this, makes movement on my own possible. Moving what you can, in any case, definitely has benefits.

My most recent power tilt wheelchair - year 2006 or so.

We'd love to Hear from You.
If you are wondering about mobility devices, use them, or are thinking about getting one, we would love to hear from you! Please comment below.


Pushing Ahead: An Easier Way
Guide To Wheelchair Selection

Doing Laundry Sitting Down!

When you sit down, doing laundry can be difficult using a top loading washer. Here is how we do it using the perfect adaptive aid, a front loading washing machine.

Original  Illustration by Anita Berglund - Copyright November 2014 Can not be copied without permission.

I Just finished a new "cartoon" illustration of Craig doing laundry. Was so happy with how it turned out, I am reposting our older "Craig does laundry video." Hope it is informative and fun in one!
Watch the "Craig Does Laundry" video below!