We are blessed to have a way to share our extraordinary lives that prove why for us, Walking Is, Way Overrated. You'll see... Stories, Life lessons, Problem Solving, Aging with a disability, all intended to encourage and help out anyone who may be new to using wheels for legs, aging, have a loved one facing challenges or you may just be interested in reading something unique. You may even smile! All glory goes to our Lord and Saviour Jesus Christ.
We decided to share how we handle tough times like what the entire world has been going. Self isolation, unable to see family and friends. For those with fragile health, fear of getting ill tries weighing us down. We will be intermittently sharing special Bible Verses to hopefully inspire and encore fellow believers and those who are desperate to know, why are we on this planet. We can have peace in our heart no matter what things may look like. This passage is primarily directed toward fellow believers. We are to encourage each other always. So here is a short video. Be Encouraged..
We just posted a video yesterday about the challenges we experience, especially during these difficult times. But as fluid as life is lately, by the end of the day, yesterday, I started considering some ideas floating out there on YouTube channels we watch. So we still take
the virus seriously, believe it exists, but we are remembering what we learned years ago, to ask questions - especially when what we are presented with just isn't making sense. Even if we have questions and doubts, we support following orders our government gives (unless it goes against God's laws of course.) Assuming that we are being told the truth, we still like to research. No matter what we hear, we will never consider the strangest theory of all, that the earth is flat. L. A. Marzulli says, go to the edge of the earth, take a photo of it and then I will believe you.
As for this new Corona strain of virus, yes, there are plenty of persons out there in conspiracy world believing this is not as serious as the influenza virus that kills a lot of people every single year. (Worth researching those statistics)
The two big conspiracies so far, is that this is the 5G network causing illness, but they don't want to tell us. Aparently 5G hasn't even been started up yet. (There are a tonne of fears about 5G- worth investigating)
And the other theory is based around the possibility that this is a way for the new World Order to set up or "happen." Pointing to how the world looks right now. Removing most citizens from daily civilian life, off the streets- all over the world - basically all at the same time! We watch some of these channels for enjoyment and interest, but definitely are not saying believe all their theories. There are legitimate questions however.
Is all this a distraction while something else is happening? (notice we don't hear a word about anything else on the mainstream news.) The whole world has been ordered to Social Distance (just like they were told in the movie Contagion), to stay 6 feet apart from each other. Schools are shut down, non-essential workers laid off or put on hold, church gatherings, concerts, conferences, huge athletic activities the NBA and NHL, all put on hold or cancelled. The World Economy facing dark times, all Resulting in what appears to be no more protests, and even terrorism (I am about to look that one up.)
Silence basically, no more protesting or people out there stirring things up and such. We learned a long while ago, to not believe every single word spoken in the mainstream media and believe in questioning a lot of what we are told. If it looks like a duck and quacks like a duck, it probably is a duck! What started to wake me up, was the first time I saw the movie called JFK, with Kevin Costner. About the assassination of John F Kennedy. It was based on the true account of Judge Jim Garrison, who tried to prove that Harvey Lee Oswald was not the lone shooter. The injuries did not compute with the laws of physics. What happened to me was what they call being "Red Pilled." If you ever watched the Matrix, the main character Neo, is given the option to either take the Red Pill (if he does, he will not be able to go back to his old life and will know the cold hard truth about what's really going on.) Or he could take the blue pill, that meant of course, he would not be awaken to reality and continue living as he was, in the "dark."
Then 9/11 happened. At first I questioned nothing, believing all they said on the news. But as time went by, documentaries (a good one is called LOOSE CHANGE). And instantly,
none of it made sense. It wasn't something you can talk about too much because those I know and love, except my husband, look at us like we are not playing with a full deck. But that doesn't matter because when you begin asking questions about the obvious things that just plum, don't make sense, you can not keep believing what you were told. Same with the JFK assassination. Try it, think about the laws of physics and how they do not appear to apply in these events. Two huge, steel reinforced towers would never be ble to drop straight down in ten/eleven seconds flat. Reduced basically to a heap of dust. That's only the first part of a multi-layered onion. So many inconsistencies and illogicality.
What To Do About Covid-19 Then?
Do what the governments are telling you. And kudos to those who stopped travelling from the first day word got out. And to those self isolating two months ago, suspecting something was coming, way to go. Sadly some of our governments took longer than they should have to make big decisions about lock downs. But we refuse to live in "What if land." We believe there is a real virus, but it may not be as bad as the regular influenza outbreaks. However, we can ask and research, but until we see concrete information stating otherwise, Err on the side of caution. We definitely trust that Bible prophecy is being fulfilled. Read Matthew 24, Luke 21, And Mark 13 and Revelation 6. And well, of course those whole Bible is God's inerrant Word. Because of Him, we have peace no matter what happens. Psalm 23.
Trust in Jesus. He really is the Only Way, The Truth and the Life. We know this based on trying life a part from Him and then spending thirty plus years with Him. A relation not a religion is what He offers. We wouldn't be here without Him. Thankfully, God our Father knows all things. We trust in Thee One Who knows what is conspiracy fact and fiction. Thankfully, He can handle our questions.
Be safe and remember don't touch your face but don't be afraid!
Hello world! This is the first time in our life that the entire world is in sync. All because of a new virus that is from the Corona virus strain. It is called Covid-19. Apparently it is always changing, I believe the term used these days is, "fluid." Based on our initial research and the concerns we have as person who are a part of the vulnerable population, trying to trust the media we made a video from that perspective right here.
As an artist, all the virus images did inspire an incomplete painting to the left. Abstracted microbes are unique and interesting, but not to be taken lightly.
As most of us can say, we have never experienced a world wide event like we are now. It really does feel like it's the end of the world as we know it. The question is, Do we feel fine? (check out that song if you aren't sure why I am referencing that song. It's catchy.)
As an artist, all the virus images did inspire an incomplete painting to the left. Abstracted microbes are unique and interesting, but not to be taken lightly.
The 24/7 talk about Quarantines, Cancellation Of Everything, Pandemic, Social Distancing, staying six feet apart, disinfecting everything and hoarding toilet paper and such has definitely increased my heart rate a lot lately. It feels like I am a warrior with my sword and shield fighting against anxiety, not Covid-19, but anxiety!
Thankfully my dear husband says he has zero anxiety. He says he doesn't think it's real, the virus that is, not the anxiety. It's my fault for watching too many conspiracy theory YouTube channels. But I think he means the intensity presented in Mainstream Media, when compared to world history. And I guess when I consider what his great grandma experienced in 1918, this, so far is a huge contrast to what happened then. She was an aboriginal woman, known for helping to heal victims hit by the deadly Spanish flu pandemic with Sturgeon oil, and roots.
If you haven't heard about that pandemic, here's a decent eye opening documentary we watched about it.
The final death toll for that horrific event ranges from 50 to 100 million worldwide. Thankfully, we know far more now about how not to spread diseases. And we don't believe we will see anything like Granny Cavanagh did.
Which is why I set out to write this article. Wiping surfaces you never may have thought of before... Watch How To Keep Surfaces Clean By What To Clean.
We spray 70% rubbing alcohol or higher if we don't have wipes and such.
The Vulnerable Population
We may not be living in 1918 thankfully, but it doesn't mean we are all guaranteed we won't get this illness. In fact my husband and myself, along with plenty of our friends who also have underlying health conditions are apparently those who run a higher mortality risk with Covid-19. Craig is almost 68 and has a physical disability as well. As for me, I'm middle Aged and was born with Spinal Muscular Atrophy type 3, Severe scoliosis is also my achilles heal. Awe heck, decades ago the Doctors told me, it wouldn't be my muscle wasting disease that would do me in, but pneumonia. So it's not a surprise to keep hearing this kind of talk. But I do feel concerned fo my aging parents, mom survived non Hodgkins lymphoma over ten years ago, dad is a heart patient..and then there are all our loved ones with special needs in our lives and our virtual family on YouTube. Shane Burcaw who lives with SMA 3 and Mary Frey who lives with Cystic Fibrosis and my hero Joni Eareckson Tada vulnerable 70 year old quadriplegic.
All of you guys are on our hearts as we all hunker down trying staying virus free. We encourage all of us to stay self quarantined and I wanted to share some practical videos about how to stay virus free. Every see a movie called Five Feet Apart. It's about Cystic Fibrosis patients and how they can't be less than 5 feet apart. They are highly susceptible to catching illnesses from fellow CF patients.
So all this pandemic talk may have huge effects on our elderly folks (we do feel for those who are alone, with no visitors. But my husband who is a volunteer, says this has been an issue forever, not just now!)
We pray for our dear elderly population, and us and our fellow vulnerable peers, but we take heart refusing to believe that we won't be able to avoid it. We trust God for His protection, we are living as self quarantined as possible, disinfecting everything we can,
And besides, personally we have more immediate issues to figure out, as I am short one personal care attendant, so Have been preparing to try sleeping in my power tilt wheelchair. While my husband chooses to sleep next to me on the futon. We get to stay up as late as we want and can rise whenever we want. I will be sharing more on this adventure as it unfolds. Hopefully someone who is suitable will apply very soon. Always an adventure. And as were are about to read, God is in charge...
As Christians, we do trust that God is in control and even though I am battling anxiety temptation, I am constantly reminded to cast all my cares on HIM for HE cares for us. And another favourite Bible passage is:
[Mat 6:25-34 NLT] 25 "That is why I tell you not to worry about everyday life--whether you have enough food and drink, or enough clothes to wear. Isn't life more than food, and your body more than clothing? 26 Look at the birds. They don't plant or harvest or store food in barns, for your heavenly Father feeds them. And aren't you far more valuable to him than they are? 27 Can all your worries add a single moment to your life? 28 "And why worry about your clothing? Look at the lilies of the field and how they grow. They don't work or make their clothing, 29 yet Solomon in all his glory was not dressed as
beautifully as they are. 30 And if God cares so wonderfully for wildflowers that are here today and thrown into the fire tomorrow, he will certainly care for you. Why do you have so little faith? 31 "So don't worry about these things, saying, 'What will we eat? What will we drink? What will we wear?' 32 These things dominate the thoughts of unbelievers, but your heavenly Father already knows all your needs. 33 Seek the Kingdom of God above all else, and live righteously, and he will give you everything you need. 34 "So don't worry about tomorrow, for tomorrow will bring its own worries. Today's trouble is enough for today.
It's been a while since posting anything here. Doesn't mean life hasn't been happening, it's full speed ahead. We hope everyone is doing well and for those in our climate, we hope you join with us in being thankful for the mildest weather that we can ever remember.
Snow and cold are not "friends" to our wheelchair tires! So it was great to not be restricted with minus twenty and thirty celsius temps. Our van lift hydraulics don't like to budge in frigid weather either. Who can blame it. Not that I ever leave the house, but my husband does all the super market shopping and all other adventures beyond our driveway. For some reason, staying indoor creating when I can, is what I do. Fatigue has been regular visitor these days, so when I am up for brain engagement, I tend to focus on my other blogs all about creativity and then my shop blog, hoping to sell my work to help recover my art supply addiction!
Yes, most creative types have an art supply addiction. Even if you don't touch them, you just see something really cool and then feel the sudden urge to "GET THAT!" Does that sound like you or anyone you know? Then there is the problem with being sure I don't hide the supplies away. Out of sight, out of mind. It really helps to inspire me, to be able to see what materials I have to spur my never quiet right brain.
Craig, has been faithfully working on his railroad painting. Squeezing that in, between shopping, volunteering, helping me out and everything else. But, he still isn't done. As soon as he is, you will see.
Recently I contacted one of my favourite ministries and I was blessed with a personal response from a lovely sister in Christ, who just also happens to have SMA type 3, like me! Struggling with disgouragement about trying to find and hire a new Care Attendant. As always, God provides the right person at the right time, His perfect time. But being a
human, I get tempted to worry and all that fun stuff. Happy to receive her response and to meet a person living who could relate to my life, is a rare thing. I love How God allows these encounters just when we need them. So I thought I would share her story from the JAF website for anyone else who may be interested.
Meet Kathey, Click here.
And if you are in need of support encouragement and such check out Joni And Friends. Joni, as you know if you have read this blog, is one of the most inspiring people I have ever read about, watched in her own bio movie, documentaries and conferences. It must be so exciting to get to live in sunny California, no snow battles and to be able to be
a beacon of Sure Hope in God's ministry to persons living with disabilities. Be encouraged.
A verse on her story page was just what I needed reminding of. Right at this moment! So awesome, how God does that! [Pro 16:9 NLT]9 We can make our plans, but the LORD determines our steps.
Lord willing, my goal is to begin writing more on this blog like I originally intended to. Be it stories about life, videos about our adventures, experiences and such, I hope to be back soon. Thanks for stopping by.
Hi everyone! Hope all is well. We have been flying through summer keeping busy. Between creating,
with Craig working on his painting about his old job on the railroad in Canada. Finally getting our wheelchair lift repaired so I could get out too! Thankfully, it was something fixable.
We were feeling sad though, that the technicians and employees we trusted over the last 25 years or so have been leaving to start new adventures. Thankful that the only one we trusted with our under van lift, is still at the shop we frequent for all of our wheelchair/ mobility devices and repairs. As well as a couple favourite sales persons.
I know we have so many adventures and possibly helpful topics that we meant to share here at WWO, but haven't. Our hope is to vlog more - keeping this site like an online journal. We plan on sharing an update on the bed in a box we purchased last year, talk about our Hell Fresh experience, Talk about loss and relationships, aging with a disability, osteoarthritis, thought on the new SMA treatment, along with anything else that may seem useful, helpful or smile worthy.
Along with the good in life always comes the not so good. Craig recently lost his older sister suddenly, not something you are ever ready for. And speaking of loss, Craig's loss of another filling in his molar - now means he is in need of a surgical extraction!
For Now here is the first in what we hope will be Craig sharing his pretty wild and crazy life stories. A lot can happen in 67 years!
Watch Worlds Collide As Craig Tells "The Switchman" Story!
This posting was just shared on our Sure Hope Gazette blog. Since these videos and this dear godly woman, my earthly hero, speaks from experience and pertains to our lives, it makes sense to share her message on this blog as well. We can only face each day because of our Saviour, our heart is that anyone who want to know about the Sure Hope we can all have, will get a lot out Joni's words.
And please don't think this message is only beneficial for persons living with physical disabilities. Not at all, this message is great for all of us. You may think, oh that's Joni, the lady who broke her neck in 1967 when she was 17. She's the lady who inspires people living with disabilities. That's great for them, but, I don't need to listen - it's not for me because I don't have a disability.
Well, we would ask you if you do think like that, please think again. Joni's message is always a powerful one to all people. Whatever you may struggle with or however you may feel, god blesses this amazing woman with a heart that shares the love of Christ. She encourages me, and millions of others. And we want to share more messages from her as we receive them to help inspire and motivate, spur on anyone who's heart longs for meaning, Sure Hope and New Life. Including seeing that quality of life is not about whether or not your body works, you are healthy or rich, successful as the world sees successful, come and hear what real Sure Hope is all about, from a woman who knows what of what she speaks.
The cool thing as often happens in my life, is how God has an amazing way of encouraging us just at the right moment, right when we need it. He knows what we need, when we need it. Today, He knew I needed to hear from my earthly hero who speaks about my Heavenly Hero, Jesus Christ. How our weaknesses really are our strengths because of Him. close to Him. He cares about all aspects of our lives. Owning Your Weakness - Joni Eareckson Tada
Forgiving Like You've Been Forgiven - Joni Eareckson Tada
The following post was place on my Heartfully Creating Blog with the accompanying video. I decided it was a good idea to share it here because he shares why he started painting later in life. Since that is a life topic, made sense to share it here too!
Chronic Pain Sufferers may find some ideas from what he says.
Here we go...Well Craig is whizzing along faster than I can keep up. Obviously time lapsing his work, would mean hours and hours of footage. So I am doing short interviews and photographing the developing stages!
Welcome to Part 3 From our new "Craig Paints," series. Craig, my husband, shows us that anyone can learn how to create a great painting without any tutorials, formal training or even following the rules LOL.
In todays episode, Craig not only share life in Peggy's Cove (Craig's version), he also share what prompted him to paint. Originally he used watercolour. When he married me, he started dabbling with my leftover acrylic paints. I taught him the tips and tricks to using this fast drying/non-re-usable once dried medium and the rest is history!
He shares a very personal reason why he paints that may encourage others who are in a similar situation as he is.
Watch Craig Paints Part 3 - Peeks To Progress, Perks To Painting With Chronic Pain
Today hear a couple great reasons why Craig paints as well as another great read story!
Hopefully, you'll be inspired to give painting with acrylics or whatever a try. And if you already create, we'd love to hear from you.
Any questions or input would be great. Craig loves feedback about his work!
Watch my earthly hero share her encouraging words on why living with dignity means living out life right until the end of our time here on earth. Th seek assisted suicide (murder) is not to die with dignity. Focus on helping and encouraging all of us aging with disabilities and others living in chronic pain, suffering from progressive illnesses and such. Let's all show them what it means to live with dignity so we can die with dignity! God is the Author of life!
Since all of my blogs are able to collide and work together, I am sharing the link to a new post that I just recently shared about where physical health and being an artist impact each other. Take a peek click the header below....
Craig using this sweet teaching tool created by one of our brightest, and best nursing students ever- my mini hoyer lift canvas/sling with little Nicole
Back when I use to paint!
So excited the day I received a gift from my favourite polymer clay artist Christi Friesen
Meet Shane and Hannah! I have a special place in my heart of course for my fellow peers who were born with SMA (Spinal Muscular Atrophy, just like me!). Shane has a great sense of humour (a little dry for some, if you aren't use to it) and attitude about life, living with SMA Type 2.
Shane, like myself, faced a shorter than most others, lifespan. That was until recently. Shane and many others have been blessed with a very new synthetic DNA treatment called Spinraza. Shane has to have an injection into his neck, directly to the spinal cord every four months! It is the first ever actual treatment for this life threatening disease. Type 1 is the number one genetic killer of infants, such as my beloved nephew at eleven days. It was created to replace the affected or missing genes to halt the atrophying effects of SMA. It is not a cure. However, because it now can be started as soon as a little one is born, they are living without the symptoms, as if the SMA was not there!
It is wonderful for those with type one and two. Shane has been using a wheelchair since he was two. He is now about twenty-sixish. The Spinraza has a mega high cost and must be taken for the rest of their life to maintain the effects. It costs hundreds of thousands for each treatment. It is covered by many people's health insurance in the USA. As for where I live in Canada...last I heard was the phone call survey I received from the Muscular Dystrophy Association, when I first learned about this amazing breakthrough. Canada was trying to decide if it would be approved for treatment here or not. Not sure what happened. Mostly because I am not interested in receiving it anyway. I personally has blessed with a long life, I am about to be 53! And I can't travel to receive the injections. I leave when I move on, up to God.
Shane has noticed that he is actually gaining some abilities he lost a decade ago. He also has to accept that his life expectancy is now the same as the average healthy adult! It may sound odd, but I understand how challenging it can be to accept when you have been prepared your whole life to leave earth early. I was misdiagnosed at about seven, when the "Specialist" told my Mom in front of me that I would be dead at twenty. (Duchenne's Muscular Dystrophy). Then re-diagnosed at thirteen with Spinal Muscular Atrophy. However, I didn't learn my life could be "normal" until I passed twenty one or two. I have doubled that age and still battle with preparing for physical death. It is a blessing but it would seem that once you are programmed to believe death will strike prematurely, it's challenging to accept and embrace life here, without pre-planning my life ending event. I am happy for Shane and think he will be just fine adjusting to the very amazing fact that he will no longer have to face a death sentence. And he has a very beautiful, funny, good natured girlfriend and caregiver,Hannah, to enjoy his new adventure called life! He was doing a great job before meeting Hannah too. She's a bonus enhancing his life!
I have been blessed and encouraged watching these two do life together. They laugh a lot and that is why so many fans watch, I am sure! So I hope you enjoy this couple's sense of humour as well as learn a lot about living with SMA and what interabled relationships can be like. You'll see why I said that when you watch their vlogs and tv interviews...Watch the video below to see. Thanks you two for helping to open the eyes of those who need to learn we are equal to everyone else. And thanks for encouraging you fellow peers to live life to the fullest, that love is for everyone. We just happen to do life in a unique way! And thanks for keeping it real!
Yesterday, we posted this message on Facebook: "Curious... Did anyone hear a sudden boom or loud rumble that lasted for a split second or more in Thunder Bay around 1:05pm EST? if you are thinking we're kooky research strange booms, mystery sky sounds...you'd be surprised." One friend heard it far away from us. No idea so far what that was. No, not a sonic boom. I even tried searching for seismic activity readings in our area but no success. It isn't the first time we've heard strange sounds in our city. A while back my husband and I once again, just working at home suddenly heard some very loud almost trumpet like sounds. Tried to record them. Oddly enough, nothing can be heard except a few faint sounds. Strange thing is, the sounds were loud and long! They were identical to many sounds we've heard around the world when researching it online. If you are interested just Google Strange Sky Noises or Trumpet sounds. Here is the video we made about that then.
Now for the newest on strange anomalies we've learned about. We enjoy watching this channel called SecureTeam10. Tyler share what he finds as well as videos and experience that others send him. He isn't sensationalistic, just wanting to talk about what is really going on in our skies and earth. We don't hold to the same views like he and other do, like there really is extraterrestrial life out there. More on our position at the bottom of the page. Right now we want to share a very puzzling recent event that most of us never heard or felt. On September 11, 2018 a "hum" or low seismic activity went around the entire globe. No effects or rumblings. Check SecureTeam's video below where we first learned about it... Watch: Something Strange Went Around The World
Another Channel we watch a lot is called MrBB333. He shares what people send him of all kinds of curious photos, sounds, observations and such, along with his research and a web sight he has that offers a one stop place to check out what's happening all around us, including the skies. He elaborated on the September 11th event that travelled actross the earth over a period of days. What is even more curious is the location of the seismic event was at the same depth in each location, 6.2 miles down! Watch His Findings...
Well watching all this had me scratching my head. I started looking around and discovered this article about how scientists plan to drill down to the earth's core (Click here to see). And what made my jaw drop was the fact that the total water and crust they have to drill through totals...6.2 miles! Here is the article if you are interested in learning more about that. As Christians, based on our research, we can't ignore the plethora of sightings and encounters are real in many cases but, they are a distraction/deception from the enemy of our souls. If your interested in learningg more about this very real topic from a Christian point of view, especially since many churches or Christians won't talk about it. Most look at you like we are out of our tree! We suggest the follow links to begin researching what they really are and how we know this provided at the bottom of the page. There is a coming great deception. Could this be part of it? Christian Links To Research All Things Odd... Like Giants, Nephilim, UFO's And Alien Abductions: Doc Marquis Chuck Missler Gary Bates L A Marzulli - The Watchers Series Timothy Alberino Steve Quayle
