Thursday, November 12, 2015

A Bergie Creation: Creative Inspiration Contest / Give Away

Check out My First Contest Giveaway!!
Hi. Just wanted to share what I am doing in other parts of my life

besides this blog. I also make handmade jewelry, run an online shop on Etsy, 3 other blogs and a You Tube Channel. So thought it would be good to share the link to my first ever jewelry give away contest event!
Details here: A Bergie Creation: Creative Inspiration Contest / Give Away: Ever Contest Give Away!!!






Friday, November 6, 2015

Craig's Xtender Wheels Clicking Update #3- Already!

The Quickie Xtender Wheel Saga continues or should I say mystery? He still loves them no matter what.  But, we have had that ongoing problem. Our friendly dealer picked up Craig's Wheelchair this morning as planned. And returned it back within a couple hours. Craig gets to nap when his "legs" are being worked on because he doesn't have a back up wheelchair. He doesn't seem to mind.
When one of the best technician's we have, returned with the Xtender wheels on, he said he was told by the company that provides them, to adjust a belt type thingy  (my paraphrase) within the mechanism in the hub. He did and Craig hopped in and tested the tweaked wheels and guess what? There was no clicking!! Don't say woo hoo just yet. The bummer part, within 15 minutes or so...well, check out the video below.


There is additional information in this video with the intent that it will help the powers that care about this have as much information as possible to figure out the issue. We just hope Sunrise/Quickie can resolve the problem. I really am wondering if it has something to do with the age of Craig's chair and the model update. The pair he tried out didn't end up being the same exact model as the pair he got.
Any thoughts, ideas, questions or feedback, please leave it below. We are thankful they still work of course. But this new clicking has changed and is loud, then not at all...never a good thing for a new fancy mechanism. 

Wednesday, November 4, 2015

Craig's Xtender Wheels- Update #2

Patience....
Thought we'd be patient and wait for a resolution to the issues Craig has been having with his Xtender wheels by Quickie and Yamaha, from Sunrise medical, purchased at Shoppers Home Health Care. If you know me, patience is a foreign word. If you are not sure what I am yapping about, just check out the related blogs by clicking here when all was great, debuting his brand new power assist wheels and
click here for the update, when his new wheels had to be replaced and then the new ones ended up doing the same thing :o(

Picking up where the last update left off, the vendor did call that same day saying they would be contacting Quickie/Sunrise and we would wait to see what they will do. And Quickie, that same day, also said, they'd contact our vendor/dealer. So we have been waiting.
I decided to contact Quickie through social media and Sunrise through email, hoping to get some help on what they would do. Thankfully, Shoppers responded promptly telling us they would contact Sunrise/Quickie and Quickie told me they would be contact Shoppers.
Yay, No More Waiting!
The waiting began. Like I said, not an easy thing for me. But Craig, no problemo. Now a month clicked by and we hadn't heard anything so, I decided to stop bugging my husband to call them.  I was desperately hoping the local dealer would phone Craig, assuming that it was up to them since he had left the call in their hands.  I get kind of untrusting thoughts sometimes wondering if people will follow through with what they say they will do and when they don't...Yah, it bothers me a lot to be that way and I can get kind of annoyingly paranoid and skeptical. I love it when I am proven wrong and yet, I don't even want to be that way in the first place. But, that's me and God is always helping me change.  It's a learned way of reacting and a choice I make as an adult, to choose to be so darn pessimistic and untrusting. I want to be more like my dear husband who helps anchor my wonky thoughts, helping me to not worry so much about trust.

It took everything in me, so I definitely had to ask for God's help to back off and let him deal with it and that whoever is meant to, would take care of Craig's chair and get it all resolved.

Needless to say as I wrote this blog,  I assumed based on past months prior, we wouldn't be able to reach our local vendor, they are really busy and therefore, had been hard to reach. That'a why I contacted Quickie a month ago, hoping to get them to do something about their product and tell the dealer what to do about it. Craig loves and recommends these wheels so much, it broke my heart for him to have this ongoing issue, even with new wheels. I know how great the wheels are, helping his rotator cuff problems. It is awesome to see him joyfully cruise uphill and be able to push a heavy grocery cart. After all, the dealer doesn't manufacture the items.

A BIG humbling moment and lesson learned, on my part, happened this afternoon. The Good Lord, (Thank You Lord!) prompted my heart as I wrote this blog, to stop and try to phone the dealer, thinking maybe I'd be able to reach someone Then I wouldn't have to worry about the whole thing. Craig was out, even though he mentioned going to the dealer personally, I thought he didn't have time to stop there or else I wouldn't have called.  Glad I did...

I dialled, and when I heard a familiar person answer, I felt relieved, I explained to her why I was calling and about waiting.  She was helpful and made sure I could get through to the appropriate person. Yay, my speculations were wrong. Shame on me. Not only did I get the person I wanted to talk to, it turned out my husband showed up at the building not long before I called and talked to the same person I was. The manager like before, was nice and cheerful and said the two of  them had arranged an appointment to put on Craig's old wheels to see if the clicking happens without the power assist wheels. So I was grateful that we didn't have a problem reaching someone and we were going ahead to do something about it. Of course, we never expect a busy company to be able to jump and respond right away, but we do expect communication. Just knowing someone has your issue under control, puts your mind at ease.
What Could Be Wrong?

When we contacted Quickie a month ago, they told us  that the first returned  pair of Xtender wheels had been sent to Yamaha, to try to figure out what was happening.

Because the wheels keep clicking, yet keep working, we thought maybe that's why we haven't heard what Quickie/Sunrise or Yamaha was going to do about it. Only God knows why they haven't told our dealer anything.

Thankfully the dealer is picking up the chair to switch out Craig's wheels to his old ones to see if it still clicks. Out guess is, they won't still click because it sounds like it is something happening in the gears or whatever mechanism is inside the wheel hub. Because the new replacement pair click 95% of the time, like the last pair, whether off or on, we do believe they need to inspect the modifications done to Craig's chair when the wheels were installed.
Modifications Mean Trouble, Maybe?
Craig's Quickie wheelchair is five years old and he was told that the wheels would be compatible with his Quickie chair. He was not told anything would have to be adjusted to make them work. He was not told that he would actually require a new model of wheelchair, nothing like that. If perhaps, Sunrise tells us that the model of Xtender wheels Craig bought requires a new Quickie wheelchair, we assume someone at some level will accept responsibility and make sure he gets what was paid for, We assume information like that would have been the responsibility of the dealer. But only if the dealer knew about it,

When Craig's wheels were being installed, the brackets, he received a call from one of our favourite technicians. He was concerned because the Xtender wheels had been updated to a new model. It was different from the ones he originally tried out a year earlier. They went on perfectly then. The technician mentioned he just discovered as he was trying to install the brackets, that their newest model update changed and now meant the wheels could not be put on like the demonstration ones had been. He suggested that he might have to alter his chair but that would mean Craig's chair would be one inch closer to the ground, (the seat pan portion.)  Craig was not told anything about that when he was in his seating assessment getting the correct paper work to obtain partial funding for the much needed wheels.

Unsure of what to say to the technician, we had mixed communication and thought the changes wouldn't happen until confirmed by Craig, that it would be okay. Understandably, the technician hung up and figured out how to install these new model brackets. Like I said, they told us that they were not the same as the model  he tested. He was under the impression that he was buying the same wheel model, that he tried out. The salesperson never said anything contrary to that, the day he was assessed with the Occupational therapist.

The day they were installed, the model change, was just as much of a surprise to the technician, as it was for Craig.  The technician did his thing, trying to problem solve and made a way for them to be installed. When his chair came back, he did lose at least one inch of height, like the techician had called about and he had to install six inch hard rubber caster wheels on the front. Craig didn't have any choice or options, he just went with the fact that he had his wheels on. The technician told us the new casters were quite expensive. His previous wheels were 8 inch pneumatic tires that provided more cushioning for him. We know it wasn't the technicians fault, he didn't know the model update meant it couldn't just be attached to Craig's 5 year old chair. Why would Quickie update a model of a product and change it so much it means a Quickie wheelchair would need to be altered so much? It doesn't make sense. But it happened.

Knowing that Craig wouldn't say much about the changes to his chair, I want to say it. It concerned me from the moment it happened. I  wish he would have been told about the model change by someone and then given the option to not get them. Because the wheels had been bought and his portion paid for about six weeks earlier, he just wanted to get it done however. He didn't have time to think about what was being done. Again, not the technician's fault, he was just doing what he was asked to do. Whether it is the dealer's responsibility or Quickie/Sunrise, we don't know yet. But, I hope we get some answers. Most of all we hope and pray that they can find what is wrong and fix it.

It is possible that something that happened in the modifications affects how the wheels go on. No, it probably won't click when his regular wheels are on. We'll find out Friday.  Just hope he gets his powered ones back the same day. He is so used to the ease of wheeling these days.
Changes Made, No Choice?!
I know I am not good at being concise with how I feel about this situation, but when it happened,  it really bothered me that he was not informed about the model change and what it would mean to his chair, and according to the dealer, they were unaware as well. Unaware until the install date, when they had to problem solve. Sunrise/Quickie Xtender, should be responsible for making sure a product fits the same, no matter what the model upgrades are and they weren't. He did not get the same wheels, that he tried out, see below the difference made to his front wheels and height.
The trial pair of Xtender Wheels. See, no adjustments to his chair had to be made - same front wheels






His actual first pair, lowered 1 inch, so they had to shrink his front to smaller casters.
Thinking Out Loud...Added Ramblings About What It Could Be...
I wrote all day on this blog and edited out a lot. I do have ADHD and it shows when I write. As I edited, I left out this part which is a repeat of what I said already, kind of....So I am including it to make sure I have all the details for the record.
Was A New Wheelchair Required?
My husband won't say anything much about it, but I feel I need to for him. Since his wheelchair had 
to be altered so much in order to fit the wheels. Could that not be the problem? Is it not possible that he could only use the newest Xtender model, with a new Quickie chair? Is it not possible that the dealer should have known and then let him know that the new model would mean serious alterations to his chair, or that he couldn't use them properly without a new wheelchair model?Shouldn't the company let the dealer know so the dealer salesperson can inform the client? 

If this is the case and reason for the clicking in another pair of brand new Xtender wheels. Who is responsible to do the right thing,? Either refund the wheels, replace the wheels with the model he actually tested and worked well and put his chair back together the way it was, or replace his Quickie chair with a new one. I say this to whoever is responsible, to date, we are to believe the dealer didn't know about the changes, so that would make it Quickie's responsibility. He was never told he needed a new model, his decision would have been different if he knew all that would happen. I don't know, I am just thinking out loud. But it really bothers me, that no one from anywhere, has made any contact with him in a month and that alterations were made to his chair without his permission. Yes, he was told, but he wasn't asked before hand.  He did receive a call, but he was  basically told they had to do it. It was the only way they could be installed. No other way to put on the $6000 plus CDN wheels he just purchased. He didn't know about the model change, neither did Shoppers apparently. Someone needs to take responsibility take care of my husband's situation. 
No Offence Intended
I don't intend to offend any companies or anything like that, but one must understand when money is paid for a product and the dealer that sold you the product is lax in caring for the customer's problems with the product. It is difficult for me to not have expectations. As for Shoppers we have been pretty much loyal customers for decades, with the exception of the times we needed to go some where else. As for Quickie, both of our manual chair needs have been supplied by Quickie.
It is my hope that they will continue with their quality and good service and help my husband. kind and as helpful as they can possibly be. 

Tuesday, October 6, 2015

HeArtfully Creating: Polymer Clay Journey: Making Your Own Colours

Just want to share what I work on when not trying to get Craig's chair fixed :o)

HeArtfully Creating: Polymer Clay Journey: Making Your Own Colours: Well, I told you about my experimentation with mixing polymer clay brands. Now, I want to share a short video about experimenting with colo...

Friday, October 2, 2015

Craig's Xtender Wheel Update...Four Months Later....

Hi. We made a video about Craig's new wonderful Xtender Power assist wheels about 4 months ago. He still loves them and they are helping his chronic shoulder issues.

Unfortunately, he had some problem with the wheels making a constant clicking sound.The company Sunrise Medical /Quickie that provides them did replace them. Thankful for that.
Bummer part,  after day one, the new pair began making the same clicking sound. It doesn't feel good having to report the same problem again because  they may think you are kooky. (Okay that is just how I think sometimes) But, we have to, so Craig did call the vendor, I let Quickie know and now we will wait to see what the company that makes them says.

Decided to make this video to see if anyone else was having the same issue. Is it normal for them?
We assumed that since it didn't click at first and the fact that they replaced the three month old wheels, (he waited to see if it would go away first), that it isn't normal. The wheels, as you will see, do work.
Corresponding You Tube Video Here...


Craig loves them and I am still happy to see him be able to have such a great device that helps his shoulder so much. So we do hope Quickie can figure out what is happening.
Also made this video for Quickie so they can hear the sound to aid in hopefully, finding a solution to this model. The test model he tried out last year, was an older model and it made no sounds for the whole 2 weeks he had them.

Modifications were made to his Quickie wheelchair in order to enable the installation. We were wondering if that meant something is wonky?? Any ideas or thoughts.

He does recommend this brand of power assist wheels to anyone who sees him. Just praying it will all be corrected and he won't have to worry if they are going to stop working or not. In Canada, these wheels are expensive, which means expectations are high. Just like a vehicle you want it to work, at least for the first year of warranty :o) Well, hopefully for years. He is being very careful with them.

Day one, four months ago. He loves these wheels. Sure hope it all gets fixed for him.

We are both supporters of Sunrise Medical and believe that they care about the customer.  The Shoppers Corporation, we believe they care about devoted customers like my husband.  We will will keep you posted to see what happens.

Anyone else who may have this problem? Let us know if you found out the cause. It sounds like some small thing is in the hub and just clicking around whether the power is turned on or off.
Comments? Thoughts? Insight? or Questions about mobility devices or Quickie Xtender Power Assist wheels, write it down below.

Have a Happy Day!

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Friday, September 18, 2015

A Bergie Creation: A Closer Look At my Etsy Shop Story....

A Bergie Creation: A Closer Look At my Etsy Shop Story....: Around 2007/2008 my artistic career began a new creative adventure, designing and creating jewelry. I really felt I would be able to offer ...

Tuesday, August 25, 2015

Saturday, August 8, 2015

I Stand In Awe...

If it wasn't for the Lord Our God, I wouldn't be able to be on this earth. Today, we were watching a debate, while I worked on a polymer clay figure (3rd attempt). This debate was with Kent Hovind a fellow believer and a University Professor named Dr. Rainbow. I wanted to share this because of how I was moved as I listened and was reminded how Awesome and Wondrous our God is. I really do Stand in Awe, even if I sit down literally. The question of creation versus evolution theory for us, is
not up for debate. However, when people try, God's Truth shines even more brighter. The arguments for a Godless creation/evolution makes no sense, even when I once thought God evolved it all. He really makes all things possible and I wanted to share the link to this debate and God's Mighty Word.

Walking would not be way overrated for us, if it wasn't for HIM!

[Psa 33:1-9 KJV] 1 Rejoice in the LORD, O ye righteous: [for] praise is comely for the upright. 2 Praise the LORD with harp: sing unto him with the psaltery [and] an instrument of ten strings. 3 Sing unto him a new song; play skilfully with a loud noise. 4 For the word of the LORD [is] right; and all his works [are done] in truth. 5 He loveth righteousness and judgment: the earth is full of the goodness of the LORD. 6 By the word of the LORD were the heavens made; and all the host of them by the breath of his mouth. 7 He gathereth the waters of the sea together as an heap: he layeth up the depth in storehouses. 8 Let all the earth fear the LORD: let all the inhabitants of the world stand in awe of him. 9 For he spake, and it was [done]; he commanded, and it stood fast.
[Psa 4:3-5 KJV] 3 But know that the LORD hath set apart him that is godly for himself: the LORD will hear when I call unto him. 4 Stand in awe, and sin not: commune with your own heart upon your bed, and be still. Selah. 5 Offer the sacrifices of righteousness, and put your trust in the LORD.

Tuesday, July 28, 2015

New Arms and Legs....

PCAs or PSWs? What's the Difference?
It's time again. Time to hire a new Personal Care Attendant/Assistant. Sadly, one of my regular girls are moving away.
Personal Care Attendants, or Personal Care Assistants and Personal Support Workers, essentially all carry out the same duties. Yes, duties may vary depending on the company one works for, or in my case, the individual you work for. Being hired by an individual, self manager or by family members to assist one individual, is far different than being hired by a company to provide care for many clients.
Over twenty years ago, I was involved with assisting in interviews to hire for the company I
originally used the services of. They used the job title Personal Care Attendant and later changed it to,  Personal Care Assistant. It worked for me, and either of those titles are what I choose to call my girls.
Personal Support Worker or Not?
When I first became a self manager about twenty years ago, one of my first employees signed up to take the very first Personal Support Worker program at our local college. She and I initially laughed, wondering why folks would have to pay to learn something that you could learn on the job. That is how she came to work for me and how I still hire, no special certificates required. She signed up for it because her school fees were being covered by her other employer, a large home care company. As she worked through the first PSW program, she did affirm that they didn't really learn anything worth paying hundreds of dollars for. She was an exceptional individual, only 19 when I hired her. She was one of the most responsible, level headed, caring individuals I ever was blessed with, to have as a PCA. She went on to use her natural skills to continue being a care giver and become a manager for a company that provides supportive housing.
When it comes to the validity of the PSW programs that are throughout North America these days, I must say, I have learned why it it was created. Well, no one told me, I base this on what I have learned since way back then. This program was created so care giving companies, such, as seniors care homes, could have a standard when hiring. It is much easier to state that applicants must have a specific diploma. It levels the playing field and they could have a foundation to start from, knowing that all applicants would know the basics. As well, the PSW program has definitely evolved into  much more, offering more healthcare skills and knowledge that was not in the original program. It makes sense to me now, even though it didn't in the beginning.
That being said,  I still choose to consider all applicants, those with or without any healthcare training. In fact, in over twenty years, I must say that the majority of my employees have not been PSWs. It hasn't been intentional. I have had a lot of wonderful ladies of all ages, who are just interested in helping me out. They are willing to learn, able to follow directions well and are just plain great employees. My employees have been college and university students, be it Out door Recreation, Nursing, Environmental Studies...the point being when you hire your own PCAs, you can set the terms you prefer. So for me, I have hire standards, in that I seek out not certain papers, but those who are trustworthy, dependable, willing to be trained, flexible, kind and compassionate. It is what works for me.
Why do I not require PSW certificates? 
Because I have found based on my eleven years with a company that did the hiring and managing, (more on that in part two to come.) that they didn't have any set standards. It was all about the interview, about the personality, their references, the ability to learn and the desire to lend a hand and listen to the tenant's directions or needs. Carrying out tasks as if it were the person, like me doing it, enabling people again, like me, to live independently. I did criticize that this company didn't have any foundational standards or requirements and that was the reason why there were often issues with employee behaviour. After all, to me, it made sense that when you hire for many tenants or clients, that you would want to have a base requirement, hoping to obtain the best quality care possible. But, since hiring my own PCAs, I choose to go by each individual, rather than seek paper work, just the way they do/did it.

Set In Stone
My experience has been that those who already work for care providing companies, instead of individual/private hire, or those who have PSW certificates, they often are set in a pattern. Some are set in stone and some not. It makes sense that when one pays and enrols in a program such as the Personal Support Worker one, you are seeking to learn and follow the directions they give you. The ultimate goal, to obtain a job in that field. No doubt, most of those who take a program like that have a specific target. Some just want to be in charge, carrying out tasks as they were taught, and even as they want to. Many of these positions, require the initiative of the employee and not the wishes or direction of the client. This is an entire different focus and when someone like me is interviewing someone with a back ground like that, I have learned to ask the right questions. I need to discover if they would be able to handle my direction, and let go of what they have been taught. It is important that I let them know that I will need them to be my arms and legs under my direction. It may sound rather odd to some, but trust me it has been an issue. Statistically, many who are trained to work in insttuions and such, get offended when you ask them to do things in a specific way. It isn't their fault, it is just how they are wired or how they were taught.

This doesn't mean PSW certificate people don't work out for a private hiring self manager like me. It means, I just need to let them know what my expectations are and to really be specific in the interview, it is usually pretty easy to know if someone needs to be the "boss" in a sense, and just wouldn't be a suitable fit for my needs.

I don't know what it is, but, nursing students and nurses are wonderful employees. Even though they too are trained to do things a certain way, they "get" that I need them to carry out tasks the way I like.  They aren't offended if I ask them to make the bed the way I like, doing it how I would if I could....

Experience Or Not?
The question then remains about hiring PCAs, should they have experience in health care or not? Well, based on what I have experienced, it sometimes helps make the initial training period more comfortable. Only because you are physically unclothed for some tasks and it is easy to feel uncomfortable at first. Knowing they have seen it all before, makes it easier. But then, not necessarily. Seriously, it seems to be all about the personality. If someone is kind, friendly and open to giving you a hand, understanding why you need them...then being naked and depending on their help, becomes more comfortable than you realized. So the answer is, yes and no. It depends on each person. Whatever works for you, works. I can only talk about and offer advice, with what I have experience with.
Thank You To All Who Have Graced My Life
I want to say that because of so many wonderful personalities, willing hearts to help and understanding of what it means to be my "arms and legs," the physical aspect of my life has been able to happen. I am blessed by God to be able to live independently because of great ladies who make it possible. Because of their smiling faces and helpful attitude, never offended by one particular request, my life is extra blessed. :o)

Monday, July 13, 2015

EXPRESS YOURSELF NO MATTER WHAT - OVERCOMING PHYSICAL CHALLENGES

Ever since I can remember, I have been making art, creating in what ever way I want. Mostly in two dimensions, painting and drawing.  . As my hands weaken, I am always adapting new ways to create. Recently, I just learned how to work with my hands using polymer clay. Never thought it would be possible, especially since my hands are at their weakest so far. I decided to make a short video encouraging anyone out there who may have had their physical abilities change their artistic life. I am here to tell you don't give  up! 
Click video below to watch!

A Coloured Pencil Drawing by Anita Berglund


If you are creative and think you can't create because of your physical situation. I am here to tell you that there is always some way to express yourself creatively. It helps that I was born with my disorder, Spinal muscular atrophy, so it has progressed slowly, leaving me time to adapt as my abilities change.
Check Out a video short on what is new this week at A Bergie Creation (July 13th 2015) My Online Easy Shop that features my handmade jewelry. If you like, please feel free to pass the link along, it helps me out a lot!

Wednesday, June 24, 2015

SURPRISE! NOT JUST TACKS CAUSE LEAKS...

If you use wheels for legs like we do, then you know all about the potential for flat tires. It's why I opt for "no-flats." After one too many flat tires on my power chair, it seemed like the best solution. However, they only work if you can handle feeling every single bump and crack. Craig's pain is amplified by bumps and cracks, so pneumatic (air) wheels work best for him. For the last year however, he has had one rear tire that springs a leak far too often. Even more mysterious, the leak is

always near the same spot on the tube.

Surprise!
This video is about looking for the reason behind the annoying leak. Lo and behold, he discovered something we never would have known about if he didn't look for a cause. It wasn't a tack, a pin, piece of glass or a nail...watch and see. We figured we should share the discovery, incase it happens to you or someone you know. Then you won't have to go through the repeated frustration we did. Even better we are trying a solution to stop it from happening again.

You may be surprised at what caused his leak.

Take a look.
If you have had this experience, let us know. If you have any questions about wheelchair maintenance, we'd love to hear from you. Between Craig and I, we have over 50 years experience of using power and manual wheelchairs. So we know a little bit that can help. 

Wednesday, June 17, 2015

Bridging The Gap!

Recently our under van lift made by the Braun Corporation hasn't been working so well. Thanks to God's leading, by putting the idea into our head, we were able to call on a good helpful friend Maurice, to make what we needed to make our unusable lift, usable. We are waiting for the part to get the lift totally fixed, but frankly, I feel safer with our new aluminum bridge. Not sure what I am talking about? That is why I am posting the "Thank You" video about this very subject.


Under Van Lift vs Inside Van Lift.
Our lift is called an "under Van Lift" which means it stores or stows away under our van. The one I grew up with that my folks had was the more typical inside van lift. It takes up interior space and would hinder me being able to sit beside my husband while I drive. See a previous video all about our wonderful van below. (or click here)


We'd love to hear from you. If you have a van lift or any questions, feel free to email us at walkingwayoverrated@gmil.com or comment below~



Yay, Craig Gets Relief - His First Quickie Xtender Power Assist Wheels!

Watch Craig's First Day With His New Quickie Xtender Wheels (click here to see the video)


Free Wheelin'
Here are a few photos of Craig taken day he finally received his new Power Assist Wheels made by Quickie Xtender. He has had them now for a month or so and he is loving them. May 20, 2016, was the first day he got them (the day these photos were taken) We live in Ontario, so we haven't seen how well they will do in our lovely winters or if he encounters serious rain. In fact he was warned that they are not waterproof per-say, but obviously he would be able to flee if rain came down.  Not going to worry about that, just enjoying them for now. He actually first learned about them when he saw a friend cruising uphill in the middle of winter, so that should prove he will be okay in our unending winters.
Power in the Hub
Craig has hurt his shoulders on more than one occasion due to the fact that wheels aren't meant to be his arms. A common issue for persons who have pushed their own wheels for decades. His injuries to his rotator cuffs (one on each shoulder) occurred while he was transferring from his bed to his wheelchair. Meaning, when you use your arms for legs and you injure those "legs," you still need to use them to get around, kind of difficult to rest the injury. It is why these wheels came highly recommended by his physio therapist. He still has to push and use his shoulders and arms, but these amazing wheels are created with sensors in the rims, that are connected to the reliable Yamaha made motors, in the hub of the wheel and then connected to the small battery pack that you can see on the back of his chair below. The harder or faster he pushes, the chair will pace itself accordingly. It is super cool.

Freedom! Craig's first day using his new power assist wheels.
He has felt the greatest relief when he does our grocery shopping. Trying to push a cart with one hand and his chair with another, especially with those stubborn  shopping cart wheels. Not too mention the weight increase as you add more and more goodies.
Phew!
And the added bonus? His sheer enjoyment just being able to go up the many hills in our neighbourhood! I am so happy for him.
Power Means Freedom!
I remember when my muscles were weakening to the point that pushing my manual wheelchair down the long halls of my high school in the eighties, was daunting. When I was about seventeen, I was blessed with my first power wheelchair! The sense of freedom was incredible. No more having to depend on others and no more slowly creeping down the halls, bit by bit...struggling to move my wheelchair and myself, to my classes. The difference between my wheels and Craig's? A power chair is driven fully by motors and two large batteries, about the size of car batteries (making my present power tilt chair weigh at least 250 pounds - without me in it!). The chair pictured below, was driven with rubber drive belts that powered the large rear wheels. My modern chair (picture below the ancient 80s one) has much smaller rear wheels and no drive belts. I believe they are called direct drive wheels, the front ones are regular wheels with no motors). And as you can see, my newer chair has tilting capability. It makes dental appointments and movie watching a dream. Literally, a dream, I fall asleep really easy when laying back like that!

Craig doing it the old fashioned way - 100% ARM POWER!
Highly Recommended
So if you are blessed like we are, in a country where mobility devices can be partially paid for with government programs, insurance settlements, Workers Compensation, or if you want to invest without any financial assistance- we can both attest to the fact that electronic mobility devices make life quality increase a hundred fold. Far worth it, if you can manage it.
My dear Grandpa and me in my first power chair. (1980s)
If You Don't Use It...
If you do get a power mobility device and are physically able...make sure, if you can use your arm muscles, to exercise as much as you can. You see that old saying, if you don't use it, you will lose it, still applies. Craig has relief using the wheels, but because he has "regular" muscles, he still has to make sure he doesn't become totally dependant on the power assist wheels, so he won't atrophy his muscles. Healthy muscles have a memory and the longer you do not use muscles, the more they weaken.
In my case, since I have spinal muscular atrophy, my muscles unavoidably weaken, so help like this, makes movement on my own possible. Moving what you can, in any case, definitely has benefits.
My most recent power tilt wheelchair - year 2006 or so.

We'd love to Hear from You.
If you are wondering about mobility devices, use them, or are thinking about getting one, we would love to hear from you! Please comment below.


Pushing Ahead: An Easier Way
Guide To Wheelchair Selection

Monday, February 2, 2015

Praise God, We Made It Through….

This time last week, I was sharing about how I was about to try spending the night sleeping in my power tilt wheelchair. Did I make it? Well, here I am. I meant to write about it the next day, but...needless to say, my brain cells were lacking all last week. After some much needed R.E.M. sleep, I can now put words together, to share the following.
I Must Be Dying…

First of all I want to thank God for giving Craig and I the strength to make it through last week. A quick recap (read about it here), my main Personal Care Attendant had to suddenly be off for a week or so, to recover from a back strain injury, acquired at home. Which meant,  I had an, "Uh Oh, what am I going to do" moment. When you depend on the arms and legs of others to get in and out of bed, among a myriad of other tasks, the temptation to panic arises during those moments. And anyone who knows me, knows that even though 99 percent of my life span, has been spent relying on the assistance of others, I am the opposite to a laid back person. When the girl I count on suddenly is unable to give me a hand and I don't have back up assistance for those "just in case moments," my initial reaction isn't as I know it should be… relax, pray to God for help, sip a cup of coffee and
Me in 1966. The best way to sleep in a bed or crib :o)
reflect on how it will all work out….Nope, that's not me, just ask my dear husband…"Craig! What are we going to do? I am going have to live at the hospital or, I must be going to die, so God knows I don't need anyone to help me. Oh and all of this is said loudly,  repeatedly, under great duress, with poor Craig reassuring me that all will work out fine. Do I accept his assessment of the situation? Nope, of course not! Again, the freak out, over reaction, panic and anticipation of a fatal coronary event ensues. And this is just when I have only one employee and am trying to hire a second person.
God's Grace, Really Is Amazing!
Well, thanks to I am sure, God's intervention, a week ago this morning,  as my injured attendant was clearly not doing well physically, an unusual peace flooded my heart and mind.  The temptation to freak out with worry, after she left, did knock at the door, but it didn't happen. Knowing that I had no one to fill in for her, an amazing calmness came over me. I even had a bigger reason to panic, I had been in process trying to hire another morning person, but hadn't yet. And yet still, I sensed that worrying and freaking wouldn't help anything, that God, as He always does, would provide what I needed.  And guess what, He did! Thank You God for Your amazing Grace, for providing me with the best of care and the hearts of three caring, committed, willing and reliable ladies. Did I worry even a little? Of course I tried it, but recanted as God took care of all the details.
The Camp Out
Okay, so yes, God provided for my needs all last week. Thank you Lord for that, thank You for everything actually. I was never stuck in or out of bed and thanks to my dear husband, he helps me out as he always does. But, like I mentioned, I wanted to try to see if I could sleep in my tilting wheelchair, just for the first night. Here's the thing, I didn't have to, I had planned for the worst, hence the plan to not go to bed, but both of my casual gals were able to give me a hand that night and morning. However, I insisted on trying out the camp out idea and decline their offers.
Energize?!
Well, Craig got comfy on the futon in the living room, I got him to wrap me as snug as a bug in a rug with my favourite "Minky" blanket, Star Trek's Deep Space Nine was set to play, while I tried to sleep….and then I tried the video of the book of John….then I tried to shut it all off….and keeping my eyes closed through it all, while Craig was sawing logs, the hours ticked by, 2….3….5…and then by six am - ish,  Craig got up and we made a great scrambled egg breakfast. It all had to be God's grace because there were times that day, where my heart felt like it was going to just stop beating. My disability involves progressive muscle weakness, so I am use to that floppy, limp feeling.  It felt like five pound weights had been strapped to my limbs. Actually that is the best way to help someone understand what progressive muscle wasting feels like. Clamp on some weight to your limbs and carry out your day. Can't be one or two pounders,  try at least five to ten pounds. Pretty much, gravity is my enemy.
Anyhoo, that following night, in our real bed,  as I laid there anticipating a restful sleep, in spite of the second, third and fourth winds,  the physical fatigue intensified and the weakness actually made me nervous. I told Craig I thought I might not make it through the night. Well, I did.  (you have no idea, how many times he hears me say those words)
Lessons
Number one, no, sleeping in my wheelchair is not a good idea. However, if I had no choice, I could survive it, Lord willing.
Lesson two, if someone offers you help, take it. After all, when you ask God for help and He throws you a life line, it is really silly to push it aside. I admit that even though I knew in my heart God would care for my needs, I took control and planned for the worst scenario and as a result spent a night of sleeplessness when I didn't have to. May He remind me of this event, should a similar scenario occur ever again.
A third lesson I want to share with anyone who doesn't know that God loves us and wants us to depend on Him. I have been hiring my own PCAs for about twenty years now, and must testify that without God being life, I wouldn't have been blessed with so many dedicated employees. He loves us and wants us to depend on His care.  I have lived without Him in my life and I could never go back to that life. If it wasn't for the love and care of Jesus Christ, this time a week ago…well, let's just say, I believe I never even would have lived to get to this point in my life.

And thank you so much to my great PCAs. You have no idea how much your willingness, blessed me with reassurance not having to "worry" about how I was going to get to or out of bed. We all made it through and are on the other side.  And thank You God for bringing our main PCA back to us, healed and raring to go.